Department of Health and Social Care written question – answered at on 11 November 2025.
Helen Maguire
Liberal Democrat Spokesperson (Primary Care and Cancer)
To ask the Secretary of State for Health and Social Care, what steps he is taking to increase awareness amongst (a) GPs and (b) NHS clinicians of Ehlers-Danlos Syndrome.
Ashley Dalton
The Parliamentary Under-Secretary for Health and Social Care
A primary goal of the Complex Ehlers-Danlos Syndrome (EDS) Service, which is commissioned by NHS England, is to educate clinicians about the diagnosis, investigation, and management of patients with complex and atypical forms of EDS. While the service focuses on rare types and accepts referrals from secondary and tertiary care, its development of guidelines and educational initiatives also benefits general practitioners (GPs), who are on the front line of patient care.
Additionally, the Royal College of General Practitioners and Ehlers-Danlos Support UK have developed the EDS GP Toolkit, which is specifically designed to provide information and guidance to GPs.
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Secretary of State was originally the title given to the two officials who conducted the Royal Correspondence under Elizabeth I. Now it is the title held by some of the more important Government Ministers, for example the Secretary of State for Foreign Affairs.
