Genetics: Screening

Department of Health and Social Care written question – answered on 15th December 2021.

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Photo of Chris Green Chris Green Conservative, Bolton West

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 25 November 2021 to Question 59814, on Genetics: Screening, whether data will be (a) collected and (b) published to outline performance on delivering the national Genomic Test Directory across each of the seven Genomic Laboratory Hubs.

Photo of Chris Green Chris Green Conservative, Bolton West

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 25 November 2021 to Question 59814 on the NHS Genomic Medicine Service, what plans he has to develop operational level guidance for the NHS Genomic Medicine Service to further support NHS delivery and Genome UK.

Photo of Chris Green Chris Green Conservative, Bolton West

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 25 November 2021 to Question 59814 on the NHS Genomic Medicine Service, what amount of funding was provided through (a) specialised commissioning and (b) highly specialised services to the NHS Genomic Medicine Service annually; for the most recent time period that data is available.

Photo of Maria Caulfield Maria Caulfield The Parliamentary Under-Secretary for Health and Social Care

NHS England and NHS Improvement are working with the NHS Genomic Laboratory Hubs on regular activity reporting including standardising approaches and reporting methods. This does not involve sharing of patient identifiable or clinical data but provides insights on the delivery of the service to support service improvement. Since April 2021, relevant activity data has been collected via a new mechanism and is currently being validated to improve its quality and completeness. Once validated, the intention is to include this information as part of routine publications.

The NHS Operational Planning Guidance will be published to outline priorities for the system. Following publication, additional guidance will be prepared for the NHS Genomic Laboratory Hubs and system partners for delivery of the NHS Genomic Medicine Service.

Due to the COVID-19 response, NHS England and NHS Improvement have put in place an interim financial regime, with funding allocated in provider blocks. The amount of funding made available by NHS England and NHS Improvement is currently being reviewed and validated. Whilst the formal funding figures are not currently available, this will remain under review by NHS England and NHS Improvement to be provided during the 2022/23 financial year, once validated.

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