Genetics: Chronic Illnesses

Department of Health and Social Care written question – answered on 23rd September 2020.

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Photo of Fleur Anderson Fleur Anderson Labour, Putney

To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the (a) social, (b) economic and (c) personal effects of (i) beta-thalassaemia and (ii) chronic genetic illnesses on the communities in which those illnesses occur.

Photo of Jo Churchill Jo Churchill The Parliamentary Under-Secretary for Health and Social Care

NHS England, as the commissioner of services for patients with beta-thalassaemia and other chronic genetic illnesses, is not responsible for assessing the social, economic and personal effects of the conditions on the communities in which they occur. However, all service specifications and policies are developed in conjunction with stakeholders, including patient groups and patient representatives, and all are subject to engagement and consultation.

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