Rare Diseases: Carers

Department of Health and Social Care written question – answered on 3rd September 2020.

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Photo of Mark Tami Mark Tami Opposition Pairing Whip (Commons)

To ask the Secretary of State for Health and Social Care, if he will publish a separate strategy for supporting families and carers of people with rare diseases, including support for their (a) mental health, (b) relationships, and (c) professional careers.

Photo of Helen Whately Helen Whately Minister of State (Department of Health and Social Care)

The Government recognises the vital role unpaid carers play, especially during this difficult period now more than ever.

In June 2018, the Government published its cross-Government Carers Action Plan 2018-2020 to increase identification, recognition and support for unpaid carers. It sets out a two-year programme of targeted work to support unpaid carers. It puts a focus on practical actions and gives visibility to the work already underway or planned within Government. The action plan is available at the following link:


Good progress has been made towards fulfilling the commitments set out in the Carers Action Plan. Last July we published the ‘Carers Action Plan: 1-year progress review’ which showcases some of the key commitments we made within the action plan and is available at the following link:


As work within the Carers Action Plan comes to an end this year, we plan to produce a final report and steps outlining the next phase of work supporting unpaid carers.

The Government has no plans to publish a separate strategy for supporting families and carers of people with rare diseases.

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