Thrombotic Thrombocytopenic Purpura

Department of Health and Social Care written question – answered on 16th July 2020.

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Photo of Bob Blackman Bob Blackman Conservative, Harrow East

To ask the Secretary of State for Health and Social Care, what data his Department holds on the (a) current prevalence and (b) annual incidence of thrombotic thrombocytopenic purpura (TTP) in England; and how that data is collected.

Photo of Bob Blackman Bob Blackman Conservative, Harrow East

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve the (a) diagnosis, (b) mortality and (c) morbidity rate of thrombotic thrombocytopenic purpura.

Photo of Jo Churchill Jo Churchill The Parliamentary Under-Secretary for Health and Social Care

The National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) records people with congenital anomalies and rare diseases across the whole of England. Data collection for rare diseases is at an early stage and currently NCARDRS does not collect data on thrombotic thrombocytopenic purpura (TTP). NCARDRS is working to expand rare disease registration and will work with interested parties to advance data collection on rare diseases including TTP.

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