Hereditary Diseases and Rare Diseases: Health Education

Department of Health and Social Care written question – answered on 29th January 2020.

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Photo of Afzal Khan Afzal Khan Shadow Minister (Home Office) (Immigration)

To ask the Secretary of State for Health and Social Care, what steps he is taking to raise awareness of rare and genetic conditions.

Photo of Jo Churchill Jo Churchill The Parliamentary Under-Secretary for Health and Social Care

Steps to increase awareness of rare conditions and improve outcomes for those living with rare diseases are being taken through the implementation of the UK Strategy for Rare Diseases, which is available at the following link:

https://www.gov.uk/government/publications/rare-diseases-strategy

The Department published an update to its implementation plan for achieving the commitments in the Strategy in England in February 2019, which can be found at the following link:

https://www.gov.uk/government/publications/uk-strategy-for-rare-diseases-2019-update-to-the-implementation-plan-for-england

A second update to the implementation plan is due to be published in spring 2020.

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