Spina Bifida

Department of Health and Social Care written question – answered on 8th October 2019.

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Photo of Jim Shannon Jim Shannon Shadow DUP Spokesperson (Human Rights), Shadow DUP Spokesperson (Health)

To ask the Secretary of State for Health and Social Care, how many people have been diagnosed with spina bifida in each of the last three years.

Photo of Jim Shannon Jim Shannon Shadow DUP Spokesperson (Human Rights), Shadow DUP Spokesperson (Health)

To ask the Secretary of State for Health and Social Care, what estimate he has made of the number of children in the UK diagnosed with congenital heart disease in each of the last five years.

Photo of Caroline Dinenage Caroline Dinenage Minister of State (Department of Health and Social Care)

The following table shows the number of reported cases of spina bifida in England in the last three years for which data are available. These data include all reported cases of spina bifida registerable in accordance with European network of population-based registries for the epidemiological surveillance of congenital anomalies (EUROCAT) guidance which is available at the following link:

https://eu-rd-platform.jrc.ec.europa.eu/eurocat

These data exclude spontaneous miscarriage before 20 weeks gestation and cases of spina bifida occulta.

Number of reported cases of spina bifida in England, 2015 - 2017

Year of birth

Number of reported spina bifida cases

Total number of births (coverage)

Total number of births in England

Estimated number of cases for England

2015

75

141,474

667,351

354

2016

204

329,301

666,050

413

2017

181

320,013

649,330

367

Source: https://www.gov.uk/government/publications/ncardrs-congenital-anomaly-annual-data

The following table shows the estimated number of cases of congenital heart disease in England in the last three years for which data are available. These data include all reported cases of CHD registerable in accordance with European network of population-based registries for the epidemiological surveillance of congenital anomalies (EUROCAT) guidance which can be viewed at the following link

https://eu-rd-platform.jrc.ec.europa.eu/eurocat

This is likely to be an under-estimate of the actual number of cases as milder forms of congenital heart disease are often diagnosed later.

The estimated number of reported cases of congenital heart disease in England, 2015 - 2017

Year of birth

Number of reported CHD cases

Total number of births (coverage)

England Total number of births in England

Estimated number of cases for England

2015

706

141,474

667,351

3,330

2016

2,169

329,301

666,050

4,387

2017

2,188

320,013

649,330

4,440

Source: https://www.gov.uk/government/publications/ncardrs-congenital-anomaly-annual-data

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