To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure the NHS is able to offer all treatment options for patients with cystic fibrosis.
Specialised services for the support and treatment of patients with cystic fibrosis (CF) are commissioned nationally by NHS England. CF services are delivered in about 20 Paediatric Cystic Fibrosis Centres and about 20 Adult Cystic Fibrosis Centres. There are separate service specifications for adults and children. These specifications are important in clearly defining what NHS England expects to be in place for providers to offer evidence-based, safe and effective care and treatment. The support equity of access to a nationally consistent, high quality service.
The specifications can be found via the following links:
In October 2017, the National Institute for Health and Care Excellence (NICE) published new guidance for the diagnosis and management of CF. This includes specific details on how to monitor the condition and manage the symptoms to improve quality of life. This guidance can be found via the following link:
NICE is the organisation responsible for assessing the clinical and cost effectiveness of medicines for the National Health Service.