Department of Health and Social Care written question – answered on 12th February 2019.

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Photo of Alex Sobel Alex Sobel Labour/Co-operative, Leeds North West

To ask the Secretary of State for Health and Social Care, if he will hold meetings with families of children with ceroid lipofuscinosis type 2 disease on the availability of Brineura on the NHS.

Photo of Steve Brine Steve Brine The Parliamentary Under-Secretary for Health and Social Care

The Department has no plans currently. The National Institute for Health and Care Excellence is currently developing guidance on Brineura (Cerliponase alfa) for treating neuronal ceroid lipofuscinosis type 2 under the highly specialised technology programme. Further information can be found at the following link:

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