Rare Diseases: Drugs

Department of Health and Social Care written question – answered on 19th December 2018.

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Photo of James Frith James Frith Labour, Bury North

To ask the Secretary of State for Health and Social Care, with reference to his policy paper of 5 December 2018 entitled Voluntary scheme for branded medicines pricing and access, whether NICE plans to review the suitability of its technology appraisal methods for rare disease treatments that do not qualify for the highly specialised technologies programme.

Photo of Steve Brine Steve Brine The Parliamentary Under-Secretary for Health and Social Care

The National Institute for Health and Care Excellence (NICE) is not yet able to advise what will be included in the scope of the review of its technology appraisal methods. NICE will begin scoping the planned review in 2019/20 with the involvement of industry and other relevant stakeholders.

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