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Department of Health and Social Care written question – answered on 5th December 2018.

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Photo of Neil O'Brien Neil O'Brien Conservative, Harborough

To ask the Secretary of State for Health and Social Care, what discussions his Department has had with NICE on its appraised criteria to facilitate progress towards a Managed Access Arrangement for Spinraza.

Photo of Steve Brine Steve Brine The Parliamentary Under-Secretary for Health and Social Care

Departmental officials have had a number of discussions with colleagues in the National Institute for Health and Care Excellence (NICE) to enquire about progress of the ongoing appraisal of nusinersen (Spinraza) for the treatment of spinal muscular atrophy. Discussions between NHS England, NICE and Biogen (the company that manufactures nusinersen) are ongoing to seek to agree a commercial agreement that would enable NICE to recommend use of nusinersen as a clinically and cost effective use of National Health Service resources.

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