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Postural Tachycardia Syndrome: Children

Department of Health and Social Care written question – answered on 5th December 2018.

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Photo of George Howarth George Howarth Labour, Knowsley

To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of the number of specialised services for children with Postural tachycardia syndrome; and if he will make a statement.

Photo of Steve Brine Steve Brine The Parliamentary Under-Secretary for Health and Social Care

Ministers decide which specialised services should be commissioned on a national basis by NHS England and take advice from the Prescribed Specialised Services Advisory Group (PSSAG) when making these decisions.

Services for postural tachycardia syndrome (PoTS) were considered for national commissioning by PSSAG but, following consultation with the Royal College of Physicians, Association of British Neurologists, the British Cardiovascular Society and the Association of British Clinical Diabetologists, they did not feel able to recommend it to Ministers for national commissioning. As the range of symptoms and the severity of PoTS varies significantly, several patients with PoTS will be accessing some services commissioned on a national basis, such as neurosciences.

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