Haemophilia: Medical Treatments

Department of Health and Social Care written question – answered on 4th September 2018.

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Photo of Jim Shannon Jim Shannon Shadow DUP Spokesperson (Human Rights), Shadow DUP Spokesperson (Health)

To ask the Secretary of State for Health and Social Care, how many people who were previously regularly receiving (a) factor VIII and (b) factor IX extended half life (EHLs) products at any point in 2017-18 have since been taken off them; and if he will take steps to ensure that patients are taken off EHLs only when it is clinically necessary.

Photo of Steve Brine Steve Brine The Parliamentary Under-Secretary for Health and Social Care

NHS England has advised data is currently being collected on patients who have switched to Extended Half Life products and will include whether a patient has switched back to a Standard Half Life product. Where the treatment regimen has changed, this is due to patient preference, clear evidence of a lack of benefit or inability to comply with the reporting requirements on patient reported outcome measures. The exact figures are under analysis.

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