Social Security Benefits: Motor Neurone Disease

Department for Work and Pensions written question – answered at on 16 July 2018.

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Photo of Layla Moran Layla Moran Liberal Democrat Spokesperson (Education)

To ask the Secretary of State for Work and Pensions, if she will hold discussions with (a) the Motor Neurone Disease Association and (b) people who have motor neurone disease on extending the special rules for terminal illness to include motor neurone disease.

Photo of Sarah Newton Sarah Newton The Minister of State, Department for Work and Pensions

I will be meeting representatives of the Motor Neurone Disease Association and the Chair of the All Party Parliamentary Group on Motor Neurone Disease, Madeleine Moon MP, on 19 July.

The Government is committed to supporting the needs of terminally ill claimants and ensuring that benefit rules are applied sensitively.

The special rules for people who are terminally ill are not condition-specific. Claimants who have Motor Neurone Disease (MND) already claim under the special rules, for example of the 1,565 people in receipt of Personal Independence Payment with MND as their primary disabling condition at the end of April 2018, 650 are receiving it under the special rules.

We will continue to keep the rules on entitlements to benefits under review to ensure they are working effectively and meeting the needs of claimants both now and in the future.

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