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Medical Records: Data Protection

Department of Health and Social Care written question – answered on 27th June 2018.

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Photo of Lord Hunt of Kings Heath Lord Hunt of Kings Heath Labour

To ask Her Majesty's Government, further to the Written Answer by Lord O'Shaughnessy on 3 May (HL7111), who are the members of the (1) National Data Opt-out Advisory Group, and (2) National Data Opt-out Editorial Board.

Photo of Lord O'Shaughnessy Lord O'Shaughnessy The Parliamentary Under-Secretary for Health and Social Care

As of 15 June 2018, membership of the National Data Opt-out Advisory Group is comprised as follows:

- Association of Directors of Adult Social Services;

- Association of Directors of Children’s Services;

- Association of Medical Research Charities;

- British Medical Association;

- Cancer Research UK;

- Care Provider Alliance;

- Clinical Commissioning Group/Trust representation;

- Genetics Alliance UK;

- Healthwatch;

- Local Government Association;

- Macmillan;

- National Association for Patient Participation;

- National Data Guardian Panel;

- NHS Health Research Authority;

- Patient and Public Voice Partner;

- Professional Records Standards Body;

- Richmond Group;

- Royal College of General Practitioners;

- Royal College of Nursing;

- Royal College of Physicians; and

- Wellcome Trust.

As of 15 June 2018, membership of the National Data Opt-out Editorial Board is:

- NHS Digital;

- NHS England;

- Wellcome Trust;

- Department of Health and Social Care;

- General practitioner representative;

- Patient representative; and

- Association of Medical Research Charities.

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