Chronic Fatigue Syndrome

Department of Health and Social Care written question – answered on 23rd April 2018.

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Photo of Alex Sobel Alex Sobel Labour/Co-operative, Leeds North West

To ask the Secretary of State for Health and Social Care, what plans he has to raise (a) awareness of and (b) accessibility to support for people suffering from myalgic encephalomyelitis.

Photo of Steve Brine Steve Brine The Parliamentary Under-Secretary for Health and Social Care

Information is available for the general public via the NHS Choices website on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS).

Clinical commissioning groups (CCGs) are responsible for commissioning many healthcare services to meet the needs and requirements of their local population including those for people with ME/CFS. In doing so, CCGs will commission services that reflect the needs of local people and that support improvements in health and healthcare outcomes.

The National Institute for Health and Care Excellence’s (NICE) clinical guidance on ME/CFS sets out best practice for treatment, care and support. On 20 September 2017, NICE announced its decision to undertake a full update of this guideline, following a review of the latest available evidence on the diagnosis and management of CFS/ME and a public consultation. More information can be found at the following links:

www.nice.org.uk/guidance/cg53

www.nice.org.uk/news/article/nice-to-begin-review-of-its-guidance-on-the-diagnosis-and-treatment-of-cfs-me

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