Genetics: Screening

Department of Health written question – answered on 20th July 2016.

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Photo of Lord Freyberg Lord Freyberg Crossbench

To ask Her Majesty’s Government, further to Written Answer by Lord Prior of Brampton on 7 July (HL829), why Genomic England cannot supply data without delay on the number of patients in the cancer programme who have subsequently died, in the light of the fact that the Office of National Statistics states that the information is available within two months of death from the cancer registry.

Photo of Lord Prior of Brampton Lord Prior of Brampton The Parliamentary Under-Secretary of State, Department of Health

The arrangements for Genomics England to access patient data are different from the routine data supplied by the Office of National Statistics or other centralised patient data services. The wider patient dataset (including mortality data) will be imported and linked when the genome data is made available to researchers.

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