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Ehlers-Danlos Syndrome: Diagnosis

Department of Health written question – answered on 7th June 2016.

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Photo of Wendy Morton Wendy Morton Conservative, Aldridge-Brownhills

To ask the Secretary of State for Health, how many cases of Ehlers-Danios Syndrome have been diagnosed in each of the last five years.

Photo of George Freeman George Freeman The Parliamentary Under-Secretary of State for Business, Innovation and Skills, The Parliamentary Under-Secretary of State for Health

These data are not held centrally by the Department.

Ehlers-Danlos Syndrome (EDS) is a complex group of heritable disorders of connective tissue with an estimated prevalence of one in 20,000. As EDS appears in a variety of forms rates of diagnosis can be underestimated.

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