Diseases

Department of Health written question – answered on 26th February 2016.

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Photo of Julie Cooper Julie Cooper Labour, Burnley

To ask the Secretary of State for Health, if he will commission a review into the effectiveness of NHS England in discharging its duties in implementing the Rare Diseases Strategy.

Photo of George Freeman George Freeman The Parliamentary Under-Secretary of State for Business, Innovation and Skills, The Parliamentary Under-Secretary of State for Health

There are no plans to commission a review into NHS England’s implementation of the UK Strategy for Rare Diseases. The UK Forum for Rare Diseases has been established to monitor implementation of the strategy across the United Kingdom. We have received a copy of the Forum’s first progress report on implementation of the strategy and this will be published on 29 February 2016 - UK Rare Disease Day.

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