To ask the Secretary of State for Health, what support is offered to families with children suffering from life-limiting or life-threatening conditions in England.
Information is not held centrally on how many children in England required 24-hour care due to life-limiting or life-threatening conditions in 2014-15. The local clinical commissioning groups (CCGs) do not collect information for the North East and Sunderland.
CCGs (and in the case of specialised services, NHS England), will commission a range of care to support children with life-limiting and life-threatening conditions, including paediatric care, and community-based nursing. A child with a life-limiting condition may be eligible for a package of continuing care, where their needs are such that they require clinical care in addition to that routinely commissioned. This might include one-to-one support. NHS England also allocates an annual grant of £11 million to children’s hospices to support their provision of palliative and respite care.
Children and young people with complex needs may also be eligible for local authority-commissioned social care to support living, short-breaks, and special educational support, where they have a special educational need.