Batten Disease: Health Services

Department of Health written question – answered on 12th June 2015.

Alert me about debates like this

Photo of Greg Mulholland Greg Mulholland Liberal Democrat, Leeds North West

To ask the Secretary of State for Health, what assessment he has made of the adequacy of provisions to treat people who have Batten Disease.

Photo of Jane Ellison Jane Ellison The Parliamentary Under-Secretary of State for Health

The neuronal ceriod lipofuscinoses (Batten disease) are a set of severely disabling degenerative diseases. Care is given in regional paediatric neuroscience centres and by local teams. We are advised by NHS England that it is at an early stage of discussion about the possibility of establishing expert centres for Batten disease. This disease does not feature in the highly specialised work programme for 2015/16 but NHS England will be considering it for inclusion in the 2016/17 work programme.

Does this answer the above question?

Yes0 people think so

No0 people think not

Would you like to ask a question like this yourself? Use our Freedom of Information site.