Neurofibromatosis

Department of Health written question – answered on 14th January 2015.

Alert me about debates like this

Photo of Cathy Jamieson Cathy Jamieson Shadow Minister (Treasury)

To ask the Secretary of State for Health, what funding he has made available for the treatment of neurofibromatosis type 1 in the last five years.

Photo of Cathy Jamieson Cathy Jamieson Shadow Minister (Treasury)

To ask the Secretary of State for Health, what steps he is taking to raise awareness of the effect of neurofibromatosis type 1.

Photo of Norman Lamb Norman Lamb The Minister of State, Department of Health

NHS England does not allocate funding to specific services; information broken down to this level is not collected.

There are currently no plans for awareness raising activity in relation to neurofibromatosis type 1 (NF1), which is an inherited condition. Information for the public on the diagnosis and treatment of NF1 can be found on the NHS Choices website, which sets out the key signs and symptoms of the condition, including: coffee colored patches on the skin, two or more neurofibromas (bumps on or under the skin); bone defects, such as bowing of the lower leg; and, a family history of NF1. The NF1 webpages can be viewed at the following link:

www.nhs.uk/conditions/Neurofibromatosis/Pages/Introduction.aspx

Further information can be found on the Neuro Foundation web site www.nfauk.org, or for general practitioners and other health professionals, on the National Institute for Health and Care Excellence website:

www.evidence.nhs.uk

Does this answer the above question?

Yes1 person thinks so

No0 people think not

Would you like to ask a question like this yourself? Use our Freedom of Information site.