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The UK NSC is currently reviewing newborn screening for very long chain acyl CoA dehydrogenase deficiency (VLCADD) against its internationally recognised criteria. A public consultation on the screening review opened on 21 November 2014 and will close on 23 February 2015. A copy of the consultation is available at
Data on the number of babies born with VLCADD deficiency in the UK and data on the number of babies who died within the first seven days from the disorder is not held centrally.