Congenital Myasthenic Syndrome

Health written question – answered at on 4 September 2014.

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Photo of Jim Shannon Jim Shannon Shadow DUP Spokesperson (Health), Shadow DUP Spokesperson (Transport), Shadow DUP Spokesperson (Human Rights)

To ask the Secretary of State for Health what discussions he has had with the British Medical Association on the prescribing of salbutamol to treat congenital myasthenia.

Photo of George Freeman George Freeman The Parliamentary Under-Secretary of State for Business, Innovation and Skills, The Parliamentary Under-Secretary of State for Health

Ministers have had no such discussions.

Salbutamol is not licensed for the treatment of congenital myasthenia. Doctors can prescribe a medicine outside the terms of its licence if this best meets the clinical need of an individual patient and on condition that they retain full clinical responsibility for that patient.

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