Cystic Fibrosis

Health written question – answered on 11th June 2014.

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Photo of Julian Sturdy Julian Sturdy Conservative, York Outer

To ask the Secretary of State for Health with reference to the Cystic Fibrosis Trust's report entitled Hope for More: Improving access to lung transplantation and care for people with cystic fibrosis, what assessment he has made of the donor lung utilisation rate for transplantation; and what measures he has identified as having the greatest potential to increase such utilisation.

Photo of Jane Ellison Jane Ellison The Parliamentary Under-Secretary of State for Health

Currently donated lungs are allocated to the designated cardiothoracic transplant centres on a zonal basis. However, the Cardiothoracic Organs Advisory Group (CTAG) have recently reviewed the allocation policy and have recommended that the size of the allocation zones be adjusted to help ensure equity of access. NHS Blood and Transplant (NHSBT) have therefore confirmed that for cardiothoracic organs, the zones will be reviewed in August 2014 to coincide with changes in liver allocation zones and from August 2015, heart and lung zones will be disaggregated and the zones reviewed separately.

CTAG have also recommended that NHSBT reviews the consequences of introducing two levels of priority for listing for lung transplants-urgent and routine, and suggest a national allocation scheme for urgent listed patients, and zonal allocation for routine listed patients.

Any proposed change would need to be validated by NHSBT, who will review the criteria for urgent listing and the statistical modelling of the potential impact of such a system. NHSBT will continue to work closely with the Cystic Fibrosis Trust to improve outcomes for patients requiring lung transplants.

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