Health written question – answered at on 13 March 2014.
To ask the Secretary of State for Health
(1) what recent assessment he has made of the efficacy of the processes for identifying (a) familial hypercholesterolemia and (b) sudden cardiac death and inherited cardiac conditions;
(2) what steps have been taken by the National Clinical Director for Heart Disease to spread good practice on identifying people who may have (a) familial hypercholesterolemia, (b) inherited sudden cardiac death or (c) another inherited heart condition.
No recent assessment has been made of the efficacy of the processes for identifying familial hypercholesterolemia, sudden cardiac death or familial hypercholesterolemia.
The National Clinical Director for Heart Disease (NCD) at NHS England is currently working with the Cardiovascular Disease Strategic Clinical Networks to promote cascade testing for the relatives of people who have familial hypercholesterolemia, sudden cardiac death or another inherited heart condition.
In addition, the NCD for Cardiac Care met with the Chief Coroner who agreed to send out a letter to all coroners highlighting the importance of offering appropriate information to families when a young (<40 years) member of their family is thought to have died from an inherited cardiac condition. The information is supplied by the British Heart Foundation (BHF), and both BHF and the charity Cardiac Risk in the Young offer support and advice regarding referral for specialist advice.
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