In terms of information which identifies a patient, NHS England’s “Better information means better care” leaflet sets out how people can ask their GP practice to note their objections, which will prevent confidential, identifiable data about them being used by the care.data programme, other than in a very limited number of exceptional circumstances.
As examples, existing public health legislation may require data to control the spread of specific infectious diseases or the police may require information about an individual patient when investigating serious crime. Decisions are made on a case-by-case basis and must balance legal requirements, the duty of confidentiality owed to the patient and the accepted public interest in a confidential health service, all against any benefits that may arise from the disclosure.
It is important to note that provisions in the Health and Social Care Act 2012 are designed to strengthen and clarify the role of the Health and Social Care Information Centre so that information can be collected, held securely and made readily available to those who need it in safe, de-identified formats, with crucial safeguards in place to protect the confidential data it holds.
The Health and Social Care Act 2012 is clear that
“information which identifies or enables identification of a person must not be published”.