The proposed indicator for improving the experience of care for people at the end of their lives will be based on responses to the National Bereavement Survey (VOICES). This survey, which seeks the views of carers on the care that their loved one received, does contain questions regarding whether or not people were involved in decisions about their care and if their preferences and choices for care were met.
The findings from the first survey have been published by the Office for National Statistics at:
http://www.ons.gov.uk/ons/rel/subnational-health1/national-bereavement-survey--voices-/2011/stb-statistical-bulletin.html with a complementary report, ‘First national VOICES survey of the bereaved: key findings report’, published by the Department. A copy of the Department's report has been placed in the Library.
The proposed indicator seeks to measure the quality of people's experience in the last three months of life.