Congenital Abnormalities

Health written question – answered on 26th June 2012.

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Photo of Madeleine Moon Madeleine Moon Labour, Bridgend

To ask the Secretary of State for Health

(1) what steps he is taking to monitor people affected by foetal anti-convulsion disorder as they make the transition into adulthood; and if he will make a statement;

(2) what estimate he has made of the number of people affected by foetal anti-convulsive syndrome owing to NHS prescriptions of (a) phenytoin, (b) carbamazepine and (c) sodium valproate; and if he will make a statement.

Photo of Anne Milton Anne Milton The Parliamentary Under-Secretary of State for Health

We have made no estimate of the number of people affected by foetal anti-convulsive syndrome, nor is the Department monitoring people affected by the condition as they make the transition into adulthood.

We recognise the importance of effective transition between children's and adults' services. It is for local health service organisations to commission a comprehensive service for all people within their local communities, including adolescents and adults and those moving through transition. Clinical commissioning groups, working in conjunction with Health and Wellbeing Boards, will be required to take account of their population's needs and commission and provide services accordingly.

There are initiatives being undertaken by Government that are seeking to improve health-related services for children and young people.

Many of the outcomes within the NHS Outcomes Framework, which sets the national outcomes that the national health service should be aiming to achieve, seek to make improvements for children and young people specifically. The Public Health Outcomes Framework also helps set a clear direction for children's health.

The Commissioning Board will also have a role in commissioning certain services, for example, highly specialised services for children and young people with a disability, where the numbers requiring such services in an area are too low for it to be viable for these services to be commissioned locally.

The Department is developing an Outcomes Strategy, which aims to improve the quality of health care services and outcomes for children and young people. The strategy focuses on the themes of public health, acutely sick children, mental health and long-term medical conditions.

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