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Muscular Dystrophy

Health written question – answered on 24th November 2011.

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Photo of Dan Rogerson Dan Rogerson Liberal Democrat, North Cornwall

To ask the Secretary of State for Health what progress has been made on establishing a managed clinical network for neuromuscular conditions in each NHS region; and if he will make a statement.

Photo of Paul Burstow Paul Burstow The Minister of State, Department of Health

During 2010-11, the 10 regional Specialised Commissioning Groups (SCGs) and National Specialised Commissioning team (NSCT) collaborated to produce a detailed work plan for neuromuscular services.

This neuromuscular work stream is led by East of England SCG working with the individual SCG/NSCT neuromuscular leads. In July, a more formal group was established and the existing work plan was enlarged to include communications and engagement.

A workshop to which patients, carers and support organisations have been invited is scheduled for later this year.

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