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Diseases: EU Action

Health written question – answered on 2nd November 2011.

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Photo of Andrew Smith Andrew Smith Labour, Oxford East

To ask the Secretary of State for Health what steps he has taken towards a UK plan for rare diseases as required by the Council of the European Union's recommendation on an action in the field of rare diseases published in June 2009 (2009/C151/02).

Photo of Simon Burns Simon Burns The Minister of State, Department of Health

The United Kingdom response to the European Council’s recommendation on the development of a national plan for rare diseases is due by the end of 2013. As part of the work in developing the plan departmental officials are working very closely with the devolved Administrations and key partners to ensure that the plan responds to the actions identified in Recommendation 2009/C 151/02. A public consultation on the draft plan is expected to be launched before the end of this year.

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