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House of Lords written question – answered on 20th July 2011.

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Photo of Lord Alton of Liverpool Lord Alton of Liverpool Crossbench

To ask Her Majesty's Government, for each year since 2003, how many (a) applications were made, and (b) licences were issued, for tissue typing; and for which diseases the licence applications were approved in each respective year.

Photo of Earl Howe Earl Howe The Parliamentary Under-Secretary of State for Health

The Human Fertilisation and Embryology Authority (HFEA) has advised that since October 2009, it has published all prelimplantation genetic diagnosis (PGD) licensing decisions on its website, including where PGD with Human Leukocyte Antigen (HLA) tissue typing applications are considered. This information is set out in the following table.

PGD: Applications Considered and Conditions Approved By HFEA
Year Number of applications considered by Executive Licence Panel Number of licences Conditions approved Conditions not approved
2009 (since October) 2 2 Fanconi's Anaemia A n/a
Fanconi's Anaemia C
2010 9 8 Diamond Blackfan Anaemia One Beta Thalassaemia application
Sickle Cell Anaemia
Recessive Dystrophic Epidermolysis Bullosa
Beta Thalassaemia
X-linked h IgM Syndrome
2011 6 6 Beta Thalassaemia n/a
Sickle Cell Anaemia
Fanconi Anaemia A
Diamond Blackfan Anaemia

Source:Human Fertilisation and Embryology Authority

The HFEA has also advised that before October 2009, PGD decisions, including HLA, were not published. However, the authority publishes a table on its website that lists all PGD/HLA conditions that have been licensed since 2003. This table can be found at: www.hfea.gov.uk/cps/hfea/gen/pgd-screening.htm

In the table on the authority's website, HLA conditions are marked with an asterisk.

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