To ask Her Majesty's Government what legal requirements there are to follow up the physical, mental, emotional, social and psychological health of children created to be saviour siblings; and, where there are no such requirements, what proportion of saviour siblings have been followed up and what criteria have been used in assessing their well-being.
To ask Her Majesty's Government whether the Human Fertilisation and Embryology Authority holds follow-up information for all saviour siblings created under licence.
There are no legal requirements for the monitoring of the long-term health of children described as "saviour siblings"-that is, those children born from embryos selected following pre-implantation tissue typing in order to help an older sibling with a serious medical condition. However, the Human Fertilisation and Embryology Authority's (HFEA) code of practice requires clinics offering pre-implantation tissue typing to have arrangements in place for inviting patients and their families to take part in long-term follow-up studies
The HFEA has advised that it does not hold follow-up information on these children.