House of Lords written question – answered on 12th November 2010.

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Photo of Lord Alton of Liverpool Lord Alton of Liverpool Crossbench

To ask Her Majesty's Government what legal requirements there are to follow up the physical, mental, emotional, social and psychological health of children created to be saviour siblings; and, where there are no such requirements, what proportion of saviour siblings have been followed up and what criteria have been used in assessing their well-being.

To ask Her Majesty's Government whether the Human Fertilisation and Embryology Authority holds follow-up information for all saviour siblings created under licence.

Photo of Earl Howe Earl Howe The Parliamentary Under-Secretary of State for Health

There are no legal requirements for the monitoring of the long-term health of children described as "saviour siblings"-that is, those children born from embryos selected following pre-implantation tissue typing in order to help an older sibling with a serious medical condition. However, the Human Fertilisation and Embryology Authority's (HFEA) code of practice requires clinics offering pre-implantation tissue typing to have arrangements in place for inviting patients and their families to take part in long-term follow-up studies

The HFEA has advised that it does not hold follow-up information on these children.

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