National NHS Database

Health written question – answered on 11th July 2005.

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Photo of Andrew Murrison Andrew Murrison Shadow Minister (Health)

To ask the Secretary of State for Health what provision will be made for NHS patients wishing not to have their data recorded on the proposed national NHS database.

Photo of Liam Byrne Liam Byrne Parliamentary Under-Secretary (Department of Health) (Care Services)

For national health service patients wishing not to have their data recorded electronically within the NHS care records service (CRS), provision will be made to exercise their rights as provided by section 10 of the Data Protection Act 1998. This requires NHS data controllers to cease processing data, where the processing is causing or is likely to cause substantial damage or distress", where that damage or distress would be unwarranted, the processing is not necessary for compliance with legal obligations and is not necessary to protect the vital interests of the data subject.

Procedures to give effect to these rights in respect of records held electronically within the CRS are being developed by the Department, in consultation with organisations representing the interests of patients and health professionals.

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