asked Her Majesty's Government:
How much funding has been awarded by the Department of Health under Section 64 of the Health Services and Public Health Act 1968 to the United Kingdom charity Action for ME since April 2003; for what purpose the award was made; and what were the terms under which it was made; and
Whether any funding has been awarded by the Department of Health under Section 64 of the Health Services and Public Health Act 1968 to any charities representing those with myalgic encephalomyelitis or chronic fatigue syndrome other than Action for ME since April 2003; if so, how much was awarded; to which charities; and for which purpose.
In February 2003, Action for Myalgic Encephalomyelitis (ME) was awarded a grant of £187,000 over a three-year period to support its chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) clinical network project. The project is intended to help all those in the field to access knowledge and share best practice on meeting the needs of patients.
The Association for Youth with ME was awarded a grant in 2002 of £110,000 over a three-year period in respect of its positive living project. This involves developing a training and information programme to empower children and young people via skills workshops to voice their experience, knowledge and needs of living with CFS/ME.
All voluntary organisations awarded Section 64 grants provide regular progress reports showing how they meet the objectives laid down by the grant conditions.