Part of the debate – in Westminster Hall at 4:50 pm on 3 February 2025.
Mark Francois
Shadow Minister (Defence)
4:50,
3 February 2025
Thank you for calling me to speak in this important debate, Ms Vaz. I look forward to serving under your chairmanship this afternoon. I also thank my hon. Friend Robbie Moore, for so ably introducing the debate and for doing it in such an empathetic manner. He mentioned that the Petitions Committee initiated a survey to gather further data on the extent of this situation, and I commend the Committee for its initiative in doing this. I will refer to some of the findings from that survey shortly.
We are here today to debate e-petition 638449, which calls for career breaks for parents of seriously ill children. Let me give the House some background to what led us here this afternoon. I am proud that the originator of this petition, Christina Harris, is my constituent. She emailed me back in early summer 2023, explaining the circumstances that she faced in trying to care for her lovely daughter, Skye, who was undergoing a course of serious medical treatment, about which her employer, a local estate agent, seemed quite unsympathetic. Having read her email, I invited her to come to one of my regular twice-monthly Constituency advice surgeries, and she duly arrived there in July 2023, by which time the number of responses to her petition was already into five figures.
When we met, Christina and I discussed at some length the background to Skye’s condition and the pressure that it had put on Christina as she tried to juggle work and family responsibilities in caring for her daughter as any loving parent would want to do. Christina seemed to me to be very focused on what she was trying to achieve. She had what the military call “a very clear sense of mission”, and she told me she was determined to achieve the 100,000 signature threshold in order to provoke a debate in Parliament. I must confess that, while I was sympathetic to what she was trying to achieve, I did explain that gathering 100,000 signatures was no mean feat, and it could prove to be quite a challenging endeavour.
I am pleased to report to the House that Christina was completely undeterred and assured me of her absolute determination to press on. Importantly, she said, she was doing this not just for her daughter, but on behalf of other families who find themselves in similar, very difficult circumstances; she was doing it for them too. By the autumn, Christina had made dramatic progress and her petition had breached the 100,000 signature threshold. This resulted in the two of us visiting 10 Downing Street to deposit a hard copy of the petition as an aid to her campaign. This subsequently generated a degree of positive publicity, including from the BBC and our local newspaper back in south Essex, the Echo, which has been very supportive.
Given her tremendous efforts in this regard, I am delighted to report that Christina is present in the gallery this afternoon to witness the debate, and that she has brought Skye with her so that she can appreciate her mother’s efforts for herself. Very importantly—and with Skye’s permission—I am delighted to report that she has rung the bell and is now in remission. May God grant that that remains so. As well as congratulating Christina and Skye, I place on record the fact that of the top 10 constituencies which have generated signatures in support of this petition, four of them are in Essex: Basildon and Billericay, with 1,034 signatures; Castle Point, with 1,304 signatures; Maldon, with 1,324 signatures; and my own constituency of Rayleigh and Wickford, which—I say this with a certain degree of pride—topped the league with 2,096 signatures, although the credit for that goes entirely to Christina and her supporters, not to me.
Unfortunately, as has already been mentioned, we do not have firm statistics on how many families find themselves in this predicament, but it may be instructive that some 9,609 respondents to the Petitions Committee survey left comments or suggestions in their reply, and of that number, 12%, or 1,153 respondents, declared that they were parents or guardians in those circumstances. It would therefore be wrong to dismiss this problem as affecting only a handful of families this year; it appears to be wider than that.
Although Skye was fortunate to receive treatment at Great Ormond Street hospital, which is a world-class institution for the care of sick children, it nevertheless placed a great deal of strain on Christina and her family. Unfortunately, Christina was ultimately dismissed by her employer because she had prioritised the care of her child over her career. For the record, Christina attempted to negotiate with her employer over a period of time to come up with some kind of flexible working arrangement, but ultimately her employer was unsympathetic.
In response to this petition, a number of parents and guardians replied with their own experiences of being in that situation. Some of their accounts, hanks to benign employers, were positive. For instance, one wrote:
“My husband and I have two separate careers in two separate fields. When our daughter was diagnosed with leukaemia at 7 months old, both of our employers supported us. We were both able to take leave and be paid for the entire duration of my daughter’s terminal illness... Our employers support to us, in what was literally a nightmare, was the reason we were able to stay by our daughter’s side at all times. She was never alone.”
Similarly, another respondent reported:
“The impact of my employer’s support greatly affected my ability to support my child. If my employer had not been so supportive and accommodating, the consequences of my child's diagnosis would have been far reaching in our lives and I am incredibly grateful.”
Overall, 58% of those who responded said that their employer was either supportive or very supportive when their child was seriously ill. A similar proportion, 54%, reported being granted flexible working arrangements to help them to care for their child. Conversely, however, 30% of respondents who were parents or guardians said that they became unemployed or stopped working during or after the period when their child was ill. One of those respondents reported:
“I was the sole earner, but we had young children at home, as well as our sick child. I was on unpaid leave for 6 months, with no financial support except from charitable help. It has taken years to climb out of the debt we were left in."
The testimony of a nurse working with families in such situations is both instructive and moving. This nurse reported:
“I have supported so many families as a children’s palliative care nurse who have had to go to work while their child was dying due to concerns of losing their job. Some of these families then lost their job during their child’s journey.”
In practice, so much of this issue seems to come down to how supportive and understanding—or not—individual employers are prepared to be in these very difficult circumstances. Such circumstances can be even more challenging for those who are self-employed and risk receiving little income or no income at all if they choose to stop work to care for their child. It is important to restate that 99% of the respondents to the survey agreed with the proposition that career breaks should be granted to the parents of seriously ill children.
In advance of this debate, I asked the House of Commons Library if it could provide some specialist advice on this issue and on what assistance is currently available to parents in what was Christina’s situation. As the Library reports, the Carer’s Leave Act 2023 introduced the right for employees to take up to one week’s unpaid leave each year to care for a dependant. That is helpful, but it in no way addresses the scale of the challenge in Christina and Skye’s circumstances.
I also asked for the Library’s advice on whether the Employment Rights Bill, which is currently going through Parliament, would help to alleviate the problem. For the record, I have some reservations about the overall effect of the Bill on the jobs market and the Government’s growth objectives, but I wanted to know, in a non-partisan way, whether any measures in the Bill would assist parents in Christina’s situation. The Library’s conclusion was as follows:
“Clauses 11 to 15 of the of the Employment Rights Bill would make some reforms to family related leave provisions. This is primarily around removing the qualifying periods for unpaid parental leave (sometimes called ‘ordinary’ parental leave and paternity leave), making them day one rights for all employees. Employees can take up to 18 weeks in total of unpaid parental leave up to their child’s 18th birthday, with a maximum of four weeks per year, for any reason related to their parental responsibilities, which could for example, include caring for a seriously ill child”.
However, the Library pointed out that there is no specific provision in the new legislation to allow for a career break for a parent with a seriously ill child. As the Library puts it,
“You ask whether the Employment Rights Bill 2024/25 includes measures to require employers to offer career breaks for parents with a seriously ill child. In short, the Bill does not include such a provision.”
I say again to the Minister that this is not meant to be a partisan point; it is just an attempt to summarise where we are in legal terms regarding what a parent in such terrible circumstances might be entitled to.
When I previously discussed this matter with Christina, including at my surgery, she was well aware of the pressure on the public finances; she appreciates that any help that could be given in these circumstances would need to be finely targeted to protect the interests of the taxpayer. Nevertheless, given the relatively small number of families who find themselves in this situation each year—compared, for instance, with the number of families who might qualify for parental leave following the birth of a child—the public expenditure implications of any ameliorative action should be relatively modest. Moreover, Christina’s proposal is that a career break could even be unpaid, if that was the only way that the employer could afford to keep the job open. The employer might employ someone else to fill the role in the intervening period, but Christina is not suggesting that the employer would necessarily have to pay both the person who was filling in and the person having the career break.
Given all that, I am genuinely interested in hearing from the Minister what proposals, if any, the Government are looking at to assist Christina’s family and other families in similar situations. Specifically, given that Christina has gone to all this time and trouble, what is the Government’s attitude towards her suggestion—and that of the signatories to the petition and respondents to the survey—that career breaks should be provided for the parents of seriously ill children?
I place on the record my admiration for my constituent Christina Harris and her daughter Skye in bringing this important issue to Parliament. When I first met Christina two years ago, she told me that she was determined to achieve 100,000 signatures or more for her petition. I commend her for having succeeded, and for coming along with her daughter to witness these proceedings for herself, and thus seeing the results of her efforts. I emphasise again that each year a relatively small number of families find themselves in these very challenging circumstances and therefore that the public expenditure implications of any very targeted relief to aid parents whose seriously ill children make it very difficult for them to work, should be relatively modest. Indeed, Christina has suggested that granting a career break should even be unpaid if that is the only way of an employer keeping the job open.
I hope that the Minister can provide some comfort to Christina and hold out hope for a solution to her and Skye, as well as other families who may find themselves in similarly challenging circumstances. I thank the more than 2,000 of my constituents in Rayleigh and Wickford, plus all others across Essex and indeed the United Kingdom, who took the time and trouble to add their names to the petition that has led to the debate today. It is a very good example of people power in action and I hope it will yet lead to a positive outcome, not just for Christina but for other families in a serious situation.
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