Dying in the Margins Project

Part of the debate – in the Scottish Parliament at on 16 November 2023.

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Photo of Carol Mochan Carol Mochan Labour

I thank my party colleague Paul O’Kane for bringing this very much overlooked issue to the chamber.

I am so glad that I had the opportunity to view the dying in the margins exhibition at the Mitchell library in Glasgow earlier this year. Like others, I found it incredibly moving. Although it is, in many ways, a heartbreaking experience, it is necessary for us to be confronted by those images of people dying in poverty. I hope that all MSPs and staff in Holyrood have had the opportunity to see the main exhibition, or even the smaller exhibition that has been mentioned, and have been able to read the report.

The stories that are highlighted by the exhibits are so often left untold, and the individuals concerned naturally felt that they were not being listened to when the last months of their life were upon them. Such an exhibition provides an outlet for people in that position and shines a light on the warmth as well as the sorrow of the daily lives of people who are living with terminal illness.

As with so many things that we experience across the course of our lives, the process of death is influenced by the poverty and inequality that are experienced by so many. They are the root of the injustice that permeates our society, and for many, that injustice can last from the cradle to the grave.

I simply cannot accept that, which is what drove me to speak in today’s debate. We must do more to stop so many having so little while the few have so much. The rich can often afford to stay at home and receive daily care directly in the place where they have lived and prospered, but for people who have suffered through a life of struggling to make ends meet, it is often the case that no such options exist, and their life ends as it proceeded, with a sense of powerlessness.

I find that to be the final injustice, and one that we should do everything to limit. Everyone deserves to have as pain-free and peaceful a death as possible, surrounded by the people who love them, in a place that comforts them and where the choice—rather than being dictated by what can be afforded—is theirs. I am thankful to Marie Curie for all the dedicated support that it provides to people, but the cost of dying often takes over. The exhibition’s use of the images enhances the words and what we have said in this debate.

I, too, was touched by some of the experiences of people in the exhibition, including Deep and Max. When I saw the image of Max and read the words, I thought, “Good on him that he did what he wanted to do.” We should be supporting that. If our economy did not simply forget about people such as Max, that would not be necessary. However, for many of those in power, it is much more convenient simply to pay no heed to the poverty that blights our society. They forget that it could happen to any of us, and we would then wish for compassion and fairness. Let me be clear: my belief is that we need not have an economy that works only for the rich. We could, rather, have one that ensures that everyone in society has the means to live and die in dignity.

I am conscious of time. I want to make sure that we all look to the conclusions of the report and, as other members have said, that we all work to make sure that we get these things in place.