Part of the debate – in the Scottish Parliament at on 16 November 2023.
Ruth Maguire
Scottish National Party
Dying is not something that most of us want to talk about, but we must. As policy makers, we have a responsibility to all our citizens from cradle to grave. The cradle bit is easy to talk about—doing all that we can to make sure that every child who is born here arrives in safety, comfort and love. It is not everything, but the box of essentials to help parents to keep each new Scottish baby warm and safe—the baby box—is a good reflection of that wish for an equal start.
We are perhaps not as good at talking about the end of life—perhaps it does not have the same feel-good factor—but we cannot ignore inequity at the end of life. We must have our eyes open, which dying in the margins, the joint study and exhibition that has been undertaken by the University of Glasgow and Marie Curie, helps us to do very well. I am very grateful to them for their work, and I am in awe of the research participants. I welcome to the gallery everyone who is involved.
This first-of-its-kind study, examining barriers to and experiences of dying at home for people who are living in poverty, shares the direct experience of participants through Margaret Mitchell’s images and the participants’ words. It is hugely powerful. I am grateful to Evelyn Tweed for sponsoring the exhibition in the Parliament.
I also thank Paul O’Kane for securing cross-party support and bringing this important topic to the chamber, giving us all the opportunity to contribute to this important debate. His speech was very thoughtful and a good start to the debate. Members’ business debates can be quite small affairs, particularly after First Minister’s Question Time, but I want everyone, particularly those in the gallery, to know that a debate can be the start of something and not just an event in itself.
In opening the debate, Paul O’Kane spoke about Max. For me, it was Marie’s story that struck me, perhaps because she was the same age as I was when I had a serious illness, and I reflect on the quite different experience that I had. Marie specifically spoke about the cost of taxis to get to her treatment. I was fortunate to have a family member move in with me and take on the specific task of running me to hospital, which made treatment a lot easier. In my area, Ayrshire, we have an excellent charity called Irvine & Troon Cancer Care, which provides that service for people who need it. It reflects the—I do not like the term—postcode lottery and the different experiences that folk have. We should not have to rely on location-specific charities to ensure that patients can fully take part in their treatment. It would be interesting to hear the Government’s reflection on that.
I support all the asks that are set out in the Marie Curie briefing. As well as actions for the United Kingdom and Scottish Governments in regard to finance, there are probably policy things that can be done more promptly. Paul O’Kane spoke about aids and adaptations, and I consider that action could be taken on those now. A constituent came to me for assistance when she had been injured falling down the stairs. She had had the aid and adaptation done in her bathroom but not yet on the stairwell, which made recovery quite challenging. We can all imagine how bad that would be.
We have a short debate time, and I know that we want to hear from every member who wants to speak, so I will just say that I will commit to working with others on the topic. I will certainly go to my local authority and health and social care partnership to see whether there are policy changes that can happen promptly to make people’s lives a bit better.
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