Part of the debate – in the Scottish Parliament at on 16 November 2023.
Jenni Minto
Scottish National Party
I, too, thank Paul O’Kane for instigating the debate, and I thank members for their powerful contributions. I, too, had the pleasure of visiting the exhibition at the University of Glasgow. I use the word “pleasure”, because it was a pleasure. The honesty of the photographs and the stories really hit home when I visited the exhibition. There were levels of serenity and acceptance, as well as the colourful clutter of Liz’s flat. All the other speakers have mentioned Max’s dog, Lily, and his great escape to be home with her. The other thing that really struck home for me was Andy’s Post-it notes and the connection that they gave him with his daughter and granddaughter. That was very, very powerful.
I pay tribute to the individuals and their families who took part in the project. I was truly inspired by their courage and strength in sharing their stories at the most difficult times of their lives. I have had conversations with the researchers but, sadly, I have not yet met any of the families. However, in response to Paul O’Kane’s request, I should say that I would be very happy to do so. There is a recognition that they were all doing this to try and change things or, as Paul O’Kane said, to “shine a bright light” on the situation, and I thank them very much for that.
As a Government, we are committed to ensuring that everyone has the dignity, respect and care necessary to their condition right up to the end of their life. That is comprehensive care, as Beatrice Wishart described. We want Scotland to be a place where people and communities can come together to support and care for each other—Ruth Maguire’s speech really emphasised this—and talk openly about planning ahead for when our health changes, and about dying and bereavement. I am sure that we can all reflect on conversations that we wish we had had with our own family members. I am certainly in that position. I would also like to reflect on what Carol Mochan said about affordability. I had a long conversation with a celebrant who emphasised that and the importance of a funeral as part of the grieving process.
One way to start having those conversations is through future care planning, which involves enabling people to talk with health and care professionals about what matters to them. The conversations are recorded and shared as a plan so that the care and support that the person subsequently receives honour that plan. Through the new palliative care strategy that we are developing, we are prioritising work on future care planning, looking at what information is available, the systems that are in place and what can be done to promote the use of such planning across Scotland. The strategy will aim to ensure that everyone who needs it receives well co-ordinated, timely and high-quality palliative care, and care around death and bereavement support, based on their needs and preferences. That support will be available to anyone who needs it regardless of age, illness or socioeconomic background.
Being diagnosed with a life-limiting illness is undoubtedly one of the most challenging things that a person can go through. No person or their family should have to worry about their finances at such a difficult time. That is why the Scottish Government ensures that adult disability benefit applications from people with a terminal illness are fast-tracked to provide them with the support that they are entitled to as quickly as possible, as Collette Stevenson noted. We also ensure that those who are terminally ill automatically receive the highest rates of assistance that they are entitled to, with no award reviews. They are eligible for that support straight away, with no qualifying period.
I would like to take the time to recognise the incredible contribution that Scotland’s unpaid carers make to our communities. The pressures that many carers face are well known to most of us. Because of that, my Government is investing more than £88 million per year in local carer support through local authority funding under the Carers (Scotland) Act 2016. The Scottish Government also recognises the extra pressures on people caring for someone with a terminal illness. We have therefore made sure that they have accelerated rights to support in their caring role.
We recognise that too many people are living in poverty, which is why we are committed to breaking that cycle of poverty in Scotland, as Richard Leonard noted. We are providing more support for social justice than ever before, with our spending on social security benefits forecast to increase by nearly £1 billion in 2024-25. That includes investment to increase the value of our Scottish child payment, funeral support payment and all disability and carers benefits in line with inflation from April 2024, with an anticipated investment of around £300 million. We are also making £83 million available for discretionary housing payments this year to fully mitigate the bedroom tax, to mitigate the benefit cap as fully as possible and to mitigate other UK Government welfare cuts.
We are investing to deliver more affordable and social homes, with £3.5 billion being made available over this parliamentary session. We are taking forward a review of the current housing adaption system, an issue that was raised by Paul O’Kane, Bob Doris and other members. We will make recommendations on how best to improve and streamline the system.
I am aware of and concerned about the pressure on household budgets, including those of disabled people, who are disproportionately impacted by energy costs. My colleague the Minister for Energy and the Environment continually urges the UK Government to take action—she has done so again this week—by using its financial and energy market levers, just as we are doing within our limited powers and fixed budget.
That is why we continue to call on the UK Government to urgently introduce a social tariff mechanism that would provide a much-needed safety net for vulnerable consumers, including disabled consumers and those who rely on medical equipment at home.
I have an awful lot more to say, but I am aware of the time. However, if the Presiding Officer is content, I will put that in a letter to everyone who has spoken.
I recognise that there is more that we can all do. As I said, we are happy to meet with Paul O’Kane.
I again thank those who allowed their stories to be told and the many people from across all sectors who deliver palliative and end-of-life care. The commitment and dedication that that takes, often in extremely challenging and upsetting circumstances, cannot be overstated. I would like to finish by offering my personal thanks for all that you do.
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