– in the Scottish Parliament at on 16 November 2023.
1. To ask the Scottish Government whether it will provide an update on the attention deficit hyperactivity disorder medication shortages, as referred to in the national patient safety alert of 27 September. (S6O-02736)
It is anticipated that the global shortage of medicines used to treat ADHD will be resolved by the end of December. The shortages are caused by a combination of manufacturing issues and an increase in demand. The pricing and supply of medicines is a reserved matter for the United Kingdom Government, and we continue to engage with that Government.
The Scottish Government recognises the impact of the global shortages on people living with ADHD and their families. NHS Scotland has robust systems in place to manage medicine shortages when they arise. Anyone affected by the issue should speak to their clinical team.
I remind members of my ADHD diagnosis and the fact that I take medication for my ADHD.
This situation has caused a huge amount of anxiety. A diagnosis and medication are what bring order to what have previously been chaotic and troubled lives for many. Although it is good to hear that the minister expects the situation to resolve itself in December, what clarity does she have on that? Critically, what practical information is being given to people? I do not know whether I should be ordering more medication, because there is advice not to stockpile. Most critically, for people on lisdexamphetamine, there are serious medical consequences if they suddenly stop taking their medication. Have people on lisdexamphetamine been written to, and is medical supervision and assistance being provided to them?
I absolutely appreciate the impact that the situation is having on individuals who require this medicine and on their families.
I spoke with my officials yesterday to confirm the timeframe, and that is the timeframe that they confirmed. Earlier in November, the Scottish Government held an extraordinary meeting of child and adolescent mental health services lead clinicians across health boards to share approaches that they were taking. They agreed to continue collective discussions on managing the shortage and on how to communicate effectively with patients.
One of my constituents recently reached out, fearing that she will no longer be able to access ADHD medication for her son. As we have heard from a colleague, life can be extremely difficult for these patients, so it is critical that they receive regular updates so that they can plan ahead and navigate this difficult time. With that in mind, are there any other steps that the Scottish Government could take to help to keep families informed of progress towards resolving the shortage?
To reiterate,
I absolutely appreciate that the medicine shortages are very concerning for patients who are affected and their families. As I said in response to Daniel Johnson, in November, the Scottish Government held an extraordinary meeting of CAMHS lead clinicians to discuss a collective approach to the shortage of ADHD medication. At that meeting, national health service boards shared the approaches that they were taking, and the group agreed to continue collective discussions.
The Scottish Government will continue close dialogue with all health boards to manage the shortage and provide support when needed.
I ask whether the minister has a handle on two things. First, there are reports that assessments are ceasing to take place in some parts of the country. Is that happening? If so, how much is it happening and what is she doing about it? Secondly, some people have been put on alternative medicines but they have not been nearly as effective. Does the minister have a handle on that as well? Does she understand the full position?
I have not been informed of the issue in the first part of Willie Rennie’s question. We will chase that up with officials.
As I understand it, any decision to change medication will be a clinical one and will be taken on a one-to-one basis. I am happy to check on that question as well.