Specialist Endometriosis Unit (Glasgow)

– in the Scottish Parliament at on 21 March 2019.

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Photo of Kenneth Gibson Kenneth Gibson Scottish National Party

1. To ask the Scottish Government whether it can confirm that the new accredited specialist endometriosis unit will open in Glasgow in April 2019. (S5O-03026)

Photo of Jeane Freeman Jeane Freeman Scottish National Party

I am delighted to confirm that the west of Scotland specialist accredited severe endometriosis service is expected to be operational from April this year.

Photo of Kenneth Gibson Kenneth Gibson Scottish National Party

I thank the cabinet secretary for that heartening answer.

Despite the fact that endometriosis affects one in 10 women, it still takes an average of 7.5 years for a woman to be diagnosed. Although there is no cure for endometriosis, having a diagnosis enables women to receive appropriate treatment; to stay in work, by having their condition understood and managed; and to make informed choices about fertility. Does the cabinet secretary agree that reducing diagnosis times should be a key priority for the new specialist unit?

Photo of Jeane Freeman Jeane Freeman Scottish National Party

I am grateful to Mr Gibson for that additional question. I agree that, for the new unit in Glasgow and for the two other units in Aberdeen and Edinburgh, reducing diagnosis times should be a key priority, and it is.

However, I also recognise that the length of the delay in diagnosis is due, in part, to the diverse nature of the symptoms, as well as a lack of reliable diagnostic tests. As yet, there is no solid evidence on what causes endometriosis to occur.

We have taken some additional steps to improve the situation. Last year, we invested £162,000 in a study by the University of Edinburgh to inform the design of a large, United Kingdom-wide clinical trial for the condition. Recently, we engaged with Endometriosis UK to discuss possible areas of mutual research interest.

I believe that research, coupled with the three specialist centres in Scotland, will go some way in raising awareness among the public and, importantly, among healthcare professionals to facilitate access to speedy diagnostics and the best treatment available.

Photo of Monica Lennon Monica Lennon Labour

In a recent written response, the cabinet secretary said that activity at the Glasgow endometriosis centre had been modelled on an expected demand of 20 cases a year. I am surprised at that low level of expected demand, given that one in 10 women have endometriosis. How was that figure reached? Will the cabinet secretary give an assurance that women in Glasgow and the surrounding area will not be forced to join long waiting lists for much-needed treatment?

Photo of Jeane Freeman Jeane Freeman Scottish National Party

Various factors are used to estimate the number of potential patients, including the use of the services in Aberdeen and Edinburgh and what clinicians in the west of Scotland—the area that the Glasgow centre will serve—anticipate the demand will be. That is the basis on which the centre has been designed. The centre can, in fact, accommodate up to 24 patients.

I mentioned research, improved diagnostic testing and so on. I expect that, over time, as the research proceeds and the diagnostic tests are, hopefully, developed through the clinical trials, we will see a significant increase in cases. We have that increase in mind for all three centres. We will look at how the centres progress and increase the capacity, if that is something that we need to do.