Part of the debate – in the Scottish Parliament at on 25 January 2018.
I do not agree with or accept that characterisation. The substance of the issue is what matters most. The health secretary met parents twice before making the decision, and I understand that the chair of the health board wants to organise a meeting with parents to discuss the individual patient plans that are to be put in place. The health secretary is happy to attend that meeting. On-going engagement with parents is vital.
Neil Bibby asked me what lessons have been learned. As everybody who has been in the position of taking such decisions knows, they are never easy. Health secretaries have to look at the evidence in the round. The views of parents are hugely important but, ultimately, it is about providing the best services for sick children.
I have already quoted a number of clinicians. I am sorry, but I do not think that such views from experts and specialist clinicians should be ignored. They were the basis for the decision. However, the community services that are to be provided are also important, and on that I think parents are absolutely right to continue to ask questions. That is why the conditions that are attached to the decision are so important and why the health secretary will make sure that both are met in full before any service change proceeds.