Part of the debate – in the Senedd at 2:37 pm on 13 June 2023.
Mark Isherwood
Conservative
2:37,
13 June 2023
I call for two statements. The first is on the Welsh Government strategy for cystic fibrosis in Wales. I'm sure you'll be aware that this week marks Cystic Fibrosis Week. Cystic fibrosis is a progressive genetic condition that primarily causes the lungs and digestive system to become clogged with mucus, and affects roughly 500 people across Wales. As well as affecting them physically and mentally, it also affects them financially. And according to a recent report conducted by the University of Bristol, the additional cost of living with cystic fibrosis is over £6,500 each year. Despite the current median age of death for someone with cystic fibrosis being tragically young, at just 38, this means that, over their lifetime, they will face roughly £0.25 million of extra costs. I therefore call for a statement from the Welsh Government on its strategy both to speed up the development of new cystic fibrosis treatments, and to address the need for financial support for people living with cystic fibrosis.
I also call for a statement from the health Minister on the care and treatment of polio survivors in Wales. As a patron of the British Polio Fellowship, I sponsored and spoke at last Wednesday evening's event in the Senedd, launching their optimal clinical care pathway for people affected by polio, attended by many polio survivors living in Wales, who emphasised how important the pathway is to them. Thousands contracted the polio virus when they were children, and they continue to suffer with its long-term consequences. The pathway is a recommended patient route through the healthcare system, which will ensure polio survivors receive the right care at the right time, and they need it to be adopted by the NHS, health boards and social care services across Wales. I therefore call for a statement by the health Minister, detailing how she will engage with the British Polio Fellowship regarding implementation of the pathway, and the need to reduce variation in care for polio survivors living in Wales. Diolch.
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