Part of the debate – in the Senedd at 6:56 pm on 24 March 2021.
Thank you, Mark Isherwood, for bringing forward this very important debate, and I just wanted to say how apt it is that we discuss such an important matter on the last day of this Senedd term. And I just want to talk very briefly about a family in my constituency.
I want to talk about Caden. He lives with his mum, Lisa, in Merthyr Tydfil, and Lisa said that her life stopped the day that she had Caden, because she then became his nurse, 24/7. I think a lot of new parents can relate to that, particularly in relation to dealing with the pandemic, but when you add the stress of knowing that this little boy has a life-limiting illness and could be taken away at any moment, then that pressure could be overwhelming. Before going to Tŷ Hafan and accessing respite care, Lisa said that the pressure was overwhelming for her, she wasn't coping and she was in denial about how these things were affecting her. Thankfully, the respite care offered to Caden and his family took that pressure away: it allowed them to catch up with sleep; it gave them a safe space to talk about the challenges that they faced; and Caden came into his own, playing and interacting with other children. It changed everything for that family.
That is why these families refer to the care that they get in hospices, as Mark Isherwood has already said, as a lifeline, and why a dedicated lifeline fund is so badly needed. I note and welcome that a funding review has been announced into hospices, but we know already that the needs of the most vulnerable people in Wales are not being fully met. So, I hope that we can all commit today, as one of the final acts of this Parliament, that a lifeline fund would be an immediate priority for the next Senedd.