Results 1–20 of 360 for sickle cell

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Written Answers — Department for Science, Innovation and Technology: Sickle Cell Diseases: Manufacturing Industries (23 Feb 2024)

Jim Shannon: ...ask the Secretary of State for Science, Innovation and Technology, what steps her Department is taking to support the growth of manufacturing capacity to (a) develop and (b) deliver treatments for sickle cell disease.

Written Answers — Department of Health and Social Care: Blood Diseases: Medical Treatments (21 Feb 2024)

George Howarth: To ask the Secretary of State for Health and Social Care, what discussions she has had with (a) NICE and (b) NHS England on encouraging the adoption of new treatments for (i) sickle cell disease and (ii) beta-thalassaemia.

Maternity Services - Motion to Take Note (25 Jan 2024)

Baroness Thornton: ...needs of our local population. I am impressed—and I hope this will be a generalist remark—that, for the varying conditions presented by pregnant women, whether epilepsy, diabetes, bipolar or sickle cell, we have midwives who are specialists in those areas. They need to be, because these conditions would have been barriers to giving birth in the past or would have made it a very...

Health and Social Care: Sickle Cell Disease (23 Jan 2024)

Sickle Cell Disease

Autumn Statement Resolutions - Rates of Tobacco Products Duty (27 Nov 2023)

Janet Daby: ...sense to focus on investing in the NHS—that cannot be said enough. If the Government are serious about getting people into work, I ask them, as the chair of the all-party parliamentary group on sickle cell and thalassemia, to focus on sickle cell. It is the UK’s most common and fastest growing genetic disorder, yet one of the least researched. I encourage the Government to invest in...

Written Answers — Department of Health and Social Care: Blood Diseases: Medical Treatments (27 Nov 2023)

Janet Daby: To ask the Secretary of State for Health and Social Care, what discussions she has had with NHS England and the National Institute for Health and Care Excellence on access to new treatments for sickle cell disease and beta thalassaemia.

Written Answers — Department of Health and Social Care: Blood: Medical Equipment (23 Nov 2023)

Andrea Leadsom: ...in the next 12 months to both increase nursing capacity and the physical space in which apheresis occurs. Horizon scanning within the advanced therapy area suggests that a significant increase in cell collection will be required within the next three to five years. The MedTech Funding Mandate for Spectra Optia in sickle cell disease has assisted in funding the expansion of services. NHS...

[Mark Pritchard in the Chair] (24 Oct 2023)

Preet Kaur Gill: ...(Ms Rimmer) focused on the workforce strategy for the NHS. I also thank my hon. Friends the Members for Liverpool, Riverside (Kim Johnson) and for Lewisham East (Janet Daby), who talked about sickle cell disease and equality in the NHS, and the hon. Member for Strangford (Jim Shannon). This debate on the future of the NHS is timely as it is our first opportunity to put to the test the...

Written Answers — Department of Health and Social Care: Screening: Age (20 Jul 2023)

Lord Markham: ...programmes include the NHS newborn blood spot screening programme, the NHS newborn hearing screening programme, the NHS newborn and infant physical examination screening programme and the NHS sickle cell and thalassaemia screening programme.

Blood Donation - Question ( 4 Jul 2023)

Baroness Manzoor: My Lords, I wish the NHS a happy 75th anniversary. My noble friend the Minister will be aware that there is a new drug to treat sickle cell anaemia in a crisis, which is proving to be very effective. Can we ensure that people of African and Caribbean descent are not confused and know that they still need to give blood because, although this drug is very effective, there is a significant gap...

Written Answers — Department of Health and Social Care: Blood: Donors (26 Jun 2023)

Neil O'Brien: ...organisations promoting blood, organ, and tissue donation since 2018. Most recently National Blood Week (NBW) has driven over 700 registrations to donate whole blood from people of Black heritage. Sickle Cell Awareness Day followed directly after NBW with a further 77 registrations from people of Black heritage, nearly double NHSBT’s daily average of registrations from this group’.

Infected Blood Inquiry (22 Jun 2023)

Fleur Anderson: ...that have been campaigning on this issue: the Scottish Infected Blood Forum, Haemophilia Wales, Haemophilia Scotland, the Hepatitis C Trust, the Haemophilia Society, Hepatitis B Positive Trust, the Sickle Cell Society, Factor 8, the Terrence Higgins Trust and all other organisations. If they did not already know it, I want them to know that we on the Opposition Benches are listening...

Business of the House (15 Jun 2023)

Janet Daby: This week I was delighted to be reselected as the chair of sickle cell and thalassaemia all-party parliamentary group. [Hon. Members: “Hear, hear.”] Thank you. This Monday is World Sickle Cell Awareness Day, yet people who suffer from the disease continue to feel ignored and let down. Will the Leader of the House speak with her colleague the Health Secretary to see what can be done to...

Artificial Intelligence and the Labour Market — [Dame Maria Miller in the Chair] (26 Apr 2023)

Dean Russell: ...AI will develop options and solutions for that group. If we do not have the right data, regarding diversity, going into the analysis, we risk not being able to identify future issues. For example, sickle cell disease might get missed because the data that the AI is using is based only on clinical trials with white people. There is a wide-ranging issue about what is being fed into the...

Written Answers — Department of Health and Social Care: Cystic Fibrosis and Sickle Cell Diseases: Health Services (30 Mar 2023)

Janet Daby: To ask the Secretary of State for Health and Social Care, what was the cost to the public purse of (a) research, (b) new treatments and (c) clinical care for (i) sickle cell disease and (ii) cystic fibrosis in the 2022-23 financial year.

Written Answers — Department of Health and Social Care: Sickle Cell Diseases: Health Services (17 Mar 2023)

Janet Daby: To ask the Secretary of State for Health and Social Care, if his Department will take steps to create an accessible portal to access sickle cell patient records and care plans.

Written Answers — Department of Health and Social Care: Sickle Cell Diseases: Training (17 Mar 2023)

Janet Daby: ...of State for Health and Social Care, if he will make an assessment of the potential impact of redeploying staff to other parts of country on the ability of medical students to participate in sickle cell specialist practical training.

Written Answers — Department for Work and Pensions: Cost of Living: Sickle Cell Diseases (15 Mar 2023)

Janet Daby: To ask the Secretary of State for Work and Pensions, what assessment he has made of the potential merits of including sickle cell patients in the support package for households to deal with the increase in living costs.

Written Answers — Department of Health and Social Care: Sickle Cell Diseases: Nutrition (14 Mar 2023)

Janet Daby: To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential merits of including in sickle cell health care protocols policies to promote the importance of nutrition.

Written Answers — Department of Health and Social Care: Sickle Cell Diseases: Prescriptions (14 Mar 2023)

Janet Daby: To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential merits of providing free prescriptions for sickle cell patients.


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