Results 1–20 of 134 for orkambi

Debate on the Address: Public Services (16 Oct 2019)

Steve McCabe: ...delays in cancer diagnosis and treatment that are costing lives needlessly. There would also be a recognition that if a five-year-old with cystic fibrosis in Scotland can get access to the drug Orkambi, so should young Jemima in my constituency and every other child like her, the length and breadth of this country. If this was not fantasy and fraudulent politics, we would have legislation...

Written Answers — Department of Health and Social Care: Orkambi and Symkevi (4 Oct 2019)

Lee Rowley: To ask the Secretary of State for Health and Social Care, what progress he has made on negotiations with Vertex Pharmaceuticals on access to Orkambi and Symkevi in England.

Business of the House (3 Oct 2019)

John Hayes: ...of cystic fibrosis know as they gasp for breath each day. Yesterday in this House, the hon. Member for Sheffield, Brightside and Hillsborough (Gill Furniss) drew our attention to the drug Orkambi, which can be a life-saving treatment. It is certainly a life-changing one for more than half those who suffer. Will the Leader of the House arrange for a statement to be made on how that drug...

Oral Answers to Questions — Prime Minister: Engagements (2 Oct 2019)

Gill Furniss: ...week I heard from my constituents Phil and Rachel Turner, whose five- year-old daughter Eliza has cystic fibrosis. They are planning to move to Scotland so she can receive the life-changing drug Orkambi on the NHS. Does the First Secretary of State agree that it is a tragedy that families should have to uproot their lives in that way? Can he confirm that funding will be found for children...

Scottish Parliament: Cystic Fibrosis Medication (12 Sep 2019)

Jackie Baillie: ...the First Minister and Jeane Freeman for listening to cystic fibrosis campaigners, including my constituent Kelli Gallagher, and for agreeing a deal with Vertex Pharmaceuticals Incorporated to make Orkambi and Symkevi free for all on the national health service. What arrangements are in place with health boards to ensure that patients receive medication quickly?

Cystic Fibrosis (Orkambi and Symkevi) (5 Sep 2019)

Cystic Fibrosis (Orkambi and Symkevi)

Written Answers — Department of Health and Social Care: Orkambi (3 Sep 2019)

Neil Coyle: To ask the Secretary of State for Health and Social Care, what the timescale is for NICE to make a decision on Orkambi.

Written Answers — Department of Health and Social Care: Cystic Fibrosis: Drugs (23 Jul 2019)

Seema Kennedy: ...meetings, are ongoing. NHS England and NHS Improvement are leading the negotiations with Vertex and have made a revised and improved offer to Vertex that would provide immediate funding for Orkambi and Symkevi in advance of a positive assessment by the National Institute for Health and Care Excellence (NICE), in addition to expanded access to Kalydeco which is already funded by the...

Health and Social Care: Cystic Fibrosis Treatment (23 Jul 2019)

Seema Kennedy: ...for patients with CF means that people are living healthier and longer lives, but I recognise that it is frustrating for everyone, in particular patients and their families, that a deal on Orkambi has not been reached. It is for Vertex and NHS England to enter negotiations. I urge Vertex to consider the latest offer from NHSE.

Batten Disease (22 Jul 2019)

Seema Kennedy: ...have access to them. However, we also have an obligation to spend taxpayers’ money in a very fair way, so that every penny we spend is done so correctly and appropriately. When it comes to PKU, Orkambi or Brineura, what we are all—NHS England and all of us here—saying to the drug companies is that we will pay a price, but we want it to be a fair price.

Written Answers — Department of Health and Social Care: Orkambi (15 Jul 2019)

Baroness Morgan of Huyton: To ask Her Majesty's Government whether a date has been set for Vertex pharmaceuticals, NICE and NHS England to convene a further meeting to discuss how the cystic fibrosis drug Orkambi can be made available to patients.

NHS Long-Term Plan: Implementation (1 Jul 2019)

Jim Shannon: ...that the Government have committed to the NHS long-term plan, particularly given the need for the cancer strategy to be fully implemented. On rare diseases, will he confirm that drugs such as Orkambi, Spinraza and medicinal cannabis will be simple to apply for and accessible for those who desperately need them now, when time is not on their side?

Written Answers — Department of Health and Social Care: Orkambi (20 Jun 2019)

Steve McCabe: To ask the Secretary of State for Health and Social Care, what contingency plans his Department has put in place in the event that Vertex declines NHS England’s latest offer for the supply of Orkambi.

Prime Minister: Engagements (12 Jun 2019)

Karl Turner: On 16 May last year the Prime Minister said that she expected a “speedy resolution” to the row between Vertex and NHS England over the cystic fibrosis treatment, Orkambi. The Prime Minister is aware of my seven-year-old constituent Oliver Ward, who wrote to her recently. In his letter he pleaded with the Prime Minister: “Why am I still waiting? I need these medicines…before I get too...

Cystic Fibrosis Drugs: Orkambi — [Mr Adrian Bailey in the Chair] (10 Jun 2019)

Paul Scully: ...-of-life drug—to all those thousands of people across the country as soon as possible. Question put and agreed to. Resolved, That this House has considered e-petition 231602 relating to access to Orkambi and other drugs for people with cystic fibrosis. Sitting adjourned.

Oral Answers to Questions — Prime Minister: Engagements (5 Jun 2019)

Karl Turner: Twelve months ago, the Prime Minister told this House that she wanted a speedy resolution to the funding row between NHS England and Vertex regarding the drug Orkambi to treat cystic fibrosis. My seven-year-old constituent Oliver Ward wrote to the Prime Minister recently asking what progress she has made. Could the Minister please give Oliver some good news and tell him that he need not get...

Written Answers — Department of Health and Social Care: Orkambi and Symkevi (29 May 2019)

Frank Field: To ask the Secretary of State for Health and Social Care, what the timetable is for the conclusion of negotiations between NHS England, NICE and Vertex on access to (a) Orkambi and (b) Symkevi for people with cystic fibrosis.

Backbench Business: Clinical Trials and Clinical Research Capability — [David Hanson in the Chair] (23 May 2019)

Jon Ashworth: ...does not mean we should not hold it to account. The Minister will know about the very heated debate that has taken place, both in public and between NHS England and Vertex, on the availability of Orkambi for cystic fibrosis sufferers. Frankly, I think Vertex has behaved shamefully. I now understand that the NHS has made Vertex an offer on a two-year managed access arrangement, and I...

Written Answers — Department of Health and Social Care: Drugs: Prices (21 May 2019)

Gill Furniss: To ask the Secretary of State for Health and Social Care, with reference to the ongoing negotiations between the NHS and Vertex pharmaceuticals on the price of cystic fibrosis drug Orkambi, if he will set out the priorities for the UK's delegation to the World Health Assembly, 21-26 May 2019; and if they will support the Italian Government's proposed resolution to improve the transparency of...


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