Results 1–20 of 116 for orkambi

Upcoming Business – Commons: Westminster Hall (10 Jun 2019)

e-petition 231602 relating to access to Orkambi and other drugs for people with cystic fibrosis – Paul Scully. Westminster Hall debate; 4:30 pm

Written Answers — Department of Health and Social Care: Cystic Fibrosis: Drugs (20 May 2019)

Laurence Robertson: To ask the Secretary of State for Health and Social Care, what recent progress has been made on making (a) Orkambi and (b) Symkevi available on the NHS for people diagnosed with cystic fibrosis; and if he will make a statement.

Written Answers — Department of Health and Social Care: NHS Scotland: Drugs (15 May 2019)

Gill Furniss: To ask the Secretary of State for Health and Social Care, what assessment he has made of the progress by NHS Scotland in securing supplies of Orkambi and Symkevi.

Disabled People - Motion to Take Note (9 May 2019)

Baroness Thornton: ...and needs to be built on. I am going to dwell on science and technology in medicine. It is wonderful that our world-class, cutting-edge science research has for example produced a drug like Orkambi, which targets the underlying causes of cystic fibrosis. It targets a mutation that around 50% of people with CF have. It is licensed for use in the UK, but NICE has not recommended it for use...

Health and Social Care: National Institute for Health and Care Excellence (7 May 2019)

Sharon Hodgson: Kuvan, Orkambi and Spinraza—these are just three life-changing drugs to which thousands of patients are being denied access on the NHS. Patients have waited far too long for the drugs they desperately need, and for some, as we have heard, it is a matter of life and death. Does the Secretary of State agree that the NICE appraisal process for rare diseases is just not fit for purpose?

Written Answers — Department of Health and Social Care: Orkambi (3 May 2019)

Ranil Jayawardena: To ask the Secretary of State for Health and Social Care, what estimate his Department has made of the value of packs of Orkambi that have been disposed of while negotiations between NHS England and Vertex Pharmaceuticals are ongoing.

Business of the House (11 Apr 2019)

Richard Benyon: Tilly Green is an 11-year-old who lives in Bradfield, in my constituency. She suffers from cystic fibrosis and would benefit from the use of a drug called Orkambi, but unfortunately the National Institute for Health and Care Excellence does not allow it to be used. I am consulting Ministers about the matter, but it would be a great help if there were the possibility of a debate in the House...

Oral Answers to Questions — Prime Minister: Engagements (10 Apr 2019)

Ronnie Campbell: ...an attack, he feels as if he is breathing through a straw. I have never tried the test, but I will when I get back to my constituency. Young people are suffering very badly because a drug called Orkambi has not been licensed by the National Institute for Health and Care Excellence. It increases the lung capacity of these kids by 42%, and it stops them having to be sent straight to hospital...

Written Answers — Department of Health and Social Care: Orkambi (1 Apr 2019)

Alex Sobel: To ask the Secretary of State for Health and Social Care, what steps his Department is taking to secure a deal with Vertex on access for patients to the drug Orkambi on the NHS.

Health and Social Care: Orkambi (26 Mar 2019)

Orkambi

Backbench Business - Services for People with Autismbackbench Business: NICE Appraisals: Rare Diseases Treatments (21 Mar 2019)

Steve Brine: ...Dispatch Box today—and with the minimum impact on the timescale for NICE’s assessment. The hon. Members for Strangford, for Bristol East and for Dudley North have all spoken about the issue of Orkambi so many times and so well. It is incredibly frustrating and disappointing to Ministers, just as it is to them and everyone else, that Orkambi is not available to NHS patients in England...

Written Answers — Department of Health and Social Care: Orkambi (21 Mar 2019)

David Linden: To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 19 January 2018 to Question 122336 on Orkambi, whether he has made an estimate of the potential savings accruing to the public purse from reduced hospital admissions in the event that Orkambi is made available on the NHS.

Written Answers — Department of Health and Social Care: Orkambi (21 Mar 2019)

David Linden: To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 19 January 2018 to Question 122358 on Orkambi: Republic of Ireland, whether he has had further discussions with his Irish counterpart on the cost-effectiveness of Orkambi in treating cystic fibrosis.

Business of the House (7 Mar 2019)

Andrea Leadsom: ...debates. He mentions the Back-Bench debate proposed for next week on rare diseases. I have two young people in my constituency with cystic fibrosis who are both desperate for access to the Orkambi drug, so it is my very dear wish that that debate go ahead. It will not surprise him to know that I am also extremely keen that it go ahead because that will mean that the House will have passed...

Previous Business – Commons: Select Committee (7 Mar 2019)

Health and Social Care: Availability of Orkambi on the NHS. 10:15 am; The Wilson Room, Portcullis House
Witnesses: A patient representative nominated by the Cystic Fibrosis Trust a clinician representative nominated by the Cystic Fibrosis Trust Professor Stephen Powis, National Medical Director John Stewart, National Director, Specialised Commissioning, NHS England Sir Andrew Dillon, Chief Executive Meindert Boysen, Director of the Centre for Health Technology Evaluation, NICE Dr Jeff Leiden, Chairman,...

Northern Ireland Budget (Anticipation and Adjustments) (No. 2) Bill (5 Mar 2019)

Jim Shannon: ...hon. and hon. Members, and we have tried to address the issues with getting funding through, because rare diseases involve minimal numbers. We need to address those issues. On access to medicines, Orkambi is very important. Those with diseases and problems who need help will understand that access to drugs is important. Diabetes is a growing time bomb in Northern Ireland, among not only...

Public Bill Committee: Immigration and Social Security Co-ordination (EU Withdrawal) Bill: Extent, commencement and short title (28 Feb 2019)

Maria Caulfield: ...the NHS services for EEA migrants, given that they often struggle to pay their tax and national insurance? Does she agree that, given that the health service is struggling to pay for drugs such as Orkambi for cystic fibrosis patients, it cannot afford to take on free healthcare for EEA nationals too?

Oral Answers to Questions — Prime Minister: Engagements (27 Feb 2019)

Stephen Hepburn: In my constituency of Jarrow there is a wonderful young lady, four-year-old Harriet Corr, whose life would improve dramatically if she had access to the cystic fibrosis drug Orkambi. It is available in Ireland and many other European countries, and is due to become available in Scotland. Will the Prime Minister intervene personally in the negotiations between the NHS and Vertex to ensure that...

Written Answers — Department of Health and Social Care: Orkambi (20 Feb 2019)

Caroline Lucas: ...place in the Library a copy of his response to the technical submission, contained in the letter to him dated 31 January 2019 from patients and campaigners on issuing a Crown Use License to make Orkambi available to all eligible patients in England; and if he will make a statement.


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