Alexander Stafford: To ask the Secretary of State for Health and Social Care, with reference to the Royal College of General Practitioner's decision to announce their intention to remove the Ehlers-Danlos syndromes (EDS) toolkit for GPs from their website, if he will work with EDS UK to facilitate a review of the toolkit and agree its future location.
Alexander Stafford: To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the effect of the Ehlers-Danlos syndromes (EDS) toolkit for GPs and healthcare professionals on the recognition, response to and management of EDS in primary care.
Alexander Stafford: ...ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that the NHS Long Term Plan improves the (a) healthcare options and (b) support for people with Hypermobile Ehlers-Danlos Syndrome.
Alexander Stafford: To ask the Secretary of State for Health and Social Care, if he will take steps to improve the clinical pathway for people with hypermobile Ehlers-Danlos syndrome.
Alexander Stafford: To ask the Secretary of State for Health and Social Care, if he will take steps to promote and enable surgical intervention to treat people with hypermobile Ehlers-Danlos syndrome.
Alexander Stafford: To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that patients diagnosed with Hypermobile Ehlers-Danlos Syndrome can access appropriate NHS healthcare to manage their complex and multi-system disorders and conditions.
Alexander Stafford: To ask the Secretary of State for Health and Social Care, what steps he is taking to improve understanding within the NHS of Hypermobile Ehlers-Danlos Syndrome and other hypermobility-related syndromes to improve (a) diagnostics and (b) clinical pathways.