Results 1–20 of 198 for speaker:Liz Twist

Oral Answers to Questions — Environment, Food and Rural Affairs: Plastic Waste Recycling (12 Jul 2018)

Liz Twist: What recent estimate he has made of the amount of plastic waste that the UK sends overseas for recycling.

Oral Answers to Questions — Environment, Food and Rural Affairs: Plastic Waste Recycling (12 Jul 2018)

Liz Twist: Will the Minister give the House more detail on the likely impact on UK plastic pollution of China’s and Thailand’s decision to restrict UK dry recycling imports?

Oral Answers to Questions — Justice: Topical Questions (10 Jul 2018)

Liz Twist: An increasing number of cases have been reported in the press where victims of serious crime, including a man who was deliberately infected with HIV, are not getting the compensation they are entitled to because of minor unspent convictions. Will the Minister commit today to reviewing the rules governing the Criminal Injuries Compensation Authority to ensure that victims are not denied...

Supply and Appropriation (Main Estimates) (No. 2) Bill: Requirement to amend definition of ivory (4 Jul 2018)

Liz Twist: It is a great privilege to speak in this debate, which is of so much interest to many of our constituents, right across the UK. I would like to talk about four things. I will speak in support of new clauses 1 and 2, but first I will refer to a couple of other issues that we discussed at some length in Committee. It would be helpful to hear the Minister’s response regarding those issues,...

Supply and Appropriation (Main Estimates) (No. 2) Bill: Requirement to amend definition of ivory (4 Jul 2018)

Liz Twist: We are keen to see that action is taken now and not deferred. From our perspective, new clause 1 would improve and strengthen the Bill. New clause 2, which is also in the name of my hon. Friend the Member for Workington, calls for a report on the ivory trade in 12 months’ time. It is important that we have a mechanism for reviewing how the Bill is operating in practice within a period...

Oral Answers to Questions — Treasury: Public Health Funding (3 Jul 2018)

Liz Twist: What recent discussions he has had with the Secretary of State for Health and Social Care on changes in the level of funding for public health since 2010.

Oral Answers to Questions — Treasury: Public Health Funding (3 Jul 2018)

Liz Twist: Gateshead Council will see a 15% reduction—that is £2.3 million—in its public health grant between 2013 and 2019-20, yet the recent NHS funding statement does not cover public health. With healthy life expectancy 13.8 years lower for men and 12.8 years lower for women in Gateshead than in many other areas, would it not make sense to invest in increased funding for public...

Ministry of Justice: Department of Health and Social Care and Ministry of Housing, Communities and Local Government (2 Jul 2018)

Liz Twist: Does the hon. Gentleman agree that housing is also a key determinant of health and that is an additional aspect that we must think about, especially in housing for older people? We must see housing as part of that bigger picture in creating a healthy nation.

Phenylketonuria: Treatment and Support — [Mr Laurence Robertson in the Chair] (26 Jun 2018)

Liz Twist: What can I say in less than one and a half minutes? I thank all hon. Members who have taken part today. I thank the hon. Members for East Renfrewshire (Paul Masterton), my hon. Friend the Member for Portsmouth South (Stephen Morgan), the hon. Member for Waveney (Peter Aldous), my hon. Friend the Member for Dudley North (Ian Austin), the hon. Members for Chelmsford (Vicky Ford), for Dwyfor...

Phenylketonuria: Treatment and Support — [Mr Laurence Robertson in the Chair] (26 Jun 2018)

Liz Twist: I beg to move, That this House has considered access to treatment, support and innovative new medicines for phenylketonuria patients. It is a pleasure to serve under your chairmanship in this important debate, Mr Robertson. It is just over 12 months since I was elected Member of Parliament for Blaydon, and only a few days less than that since I first heard of phenylketonuria—commonly...

Phenylketonuria: Treatment and Support — [Mr Laurence Robertson in the Chair] (26 Jun 2018)

Liz Twist: My hon. Friend is absolutely right, and of course there are many others working hard in the NSPKU. PKU is a rare inherited disorder, affecting about one in 10,000 babies. Most people are familiar with the pinprick test that newborn babies are given; that is how the condition is picked up. It is one of a series of tests given. People with PKU are unable to break down the amino acid...

Phenylketonuria: Treatment and Support — [Mr Laurence Robertson in the Chair] (26 Jun 2018)

Liz Twist: I agree. There is incredible strain on parents—and of course on people with the disease, but we must not forget about the parents.

Phenylketonuria: Treatment and Support — [Mr Laurence Robertson in the Chair] (26 Jun 2018)

Liz Twist: My hon. Friend is right, and I want to touch on that issue. As well as having to have bread specially baked with prescribed flour, people with PKU can have no cheese, eggs or dairy products. Even some vegetables, such as cauliflower, are problematic, and so are potatoes, so there can be no chips or crisps. The daily intake of food needs to be monitored constantly. Imagine how that must be for...

Phenylketonuria: Treatment and Support — [Mr Laurence Robertson in the Chair] (26 Jun 2018)

Liz Twist: I agree; it is important to look at the question in the round. Many parents find that they need to give up work or reduce their hours to maintain their child’s diet and keep them healthy. At the end of last year, the NSPKU produced a booklet and video, “Patient Voices: Listening to the experience of people living with PKU”, which clearly and movingly sets out the practical...

Phenylketonuria: Treatment and Support — [Mr Laurence Robertson in the Chair] (26 Jun 2018)

Liz Twist: I most certainly agree that it places an incredible strain on parents, who must live with that all the time. I recommend the “Patient Voices” booklet and video to anyone who has not already seen them. In this debate, I will highlight very specific concerns about treatment and support for PKU. The first is the issue of access to a drug treatment, sapropterin, which is thankfully...

Phenylketonuria: Treatment and Support — [Mr Laurence Robertson in the Chair] (26 Jun 2018)

Liz Twist: I absolutely agree. I hope that one of the good things that will come out of this debate will be that the buck stops being passed, and the assessment gets done as quickly as possible. It is so important for people to have access to this drug; we need that to be sorted. There is evidence that for a significant proportion of people with PKU—about 25% —this drug can significantly...

Phenylketonuria: Treatment and Support — [Mr Laurence Robertson in the Chair] (26 Jun 2018)

Liz Twist: I certainly do join the hon. Lady in that wish. I too have met BioMarin, which says it is prepared to negotiate significantly on the price, but we need to get in there and ensure that it happens quickly.

Phenylketonuria: Treatment and Support — [Mr Laurence Robertson in the Chair] (26 Jun 2018)

Liz Twist: I certainly agree with my right hon. Friend. It has become clear, as we have looked into the issue, that there is a very complex way of assessing drugs. Clearly, we want to get the process right, but there needs to be a rigorous look at that process, not just for Kuvan, but for other treatments for rare diseases. PKU perhaps falls between the cracks, because it is not quite rare enough to be...


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