Results 1–20 of 425 for (in the 'Commons debates' OR in the 'Westminster Hall debates' OR in the 'Lords debates' OR in the 'Northern Ireland Assembly debates') speaker:Carol Monaghan

Post-18 Education (20 Feb 2018)

Carol Monaghan: I thank the Secretary of State for advance sight of his statement. The Prime Minister’s speech yesterday had plenty of platitudes and good intentions, but there has been absolutely nothing of substance. We have had an admission that the current system in England is not working for students. Admitting that it is wrong is one thing, but failing to correct the situation is simply...

PACE Trial: People with ME — [Mr Philip Hollobone in the Chair] (20 Feb 2018)

Carol Monaghan: I thank the Minister for that. However, they were not disclosed to the PACE participants.

PACE Trial: People with ME — [Mr Philip Hollobone in the Chair] (20 Feb 2018)

Carol Monaghan: I beg to move, That this House has considered the PACE trial and its effect on people with ME. It is a pleasure to serve under your chairmanship, Mr Hollobone. “The doctor doesn’t see me crawl on the floor. The doctor doesn’t know I don’t shower every day or brush my teeth twice a day like everyone else. He isn’t aware of my frequent sore throats, my poor...

PACE Trial: People with ME — [Mr Philip Hollobone in the Chair] (20 Feb 2018)

Carol Monaghan: I thank the hon. Gentleman for his intervention. I will come on to the NICE guidelines later in my speech. Although ME is a pathological, not psychological, condition, much about it remains a mystery. The reasons for that are twofold. First, many sufferers are housebound and therefore easy for society to ignore. Secondly, there is a lack of awareness among medical professionals and as a...

PACE Trial: People with ME — [Mr Philip Hollobone in the Chair] (20 Feb 2018)

Carol Monaghan: Absolutely. The public perceive it as mere tiredness, but it is so much more than that. The debilitating pain that ME sufferers experience is something that we all should be aware of. The participants in the PACE trial received a range of different treatments, including cognitive behaviour therapy and graded exercise therapy, where patients were encouraged to become physically active and then...

PACE Trial: People with ME — [Mr Philip Hollobone in the Chair] (20 Feb 2018)

Carol Monaghan: I thank the hon. Gentleman for his intervention. It is typical, because the PACE trial had such publicity and was lauded by many as the answer. One participant in the original trial has contacted me: “I was determined to be a part of the...trial because I wanted to get better—so if this ‘treatment’ could make me better I wanted to give it the chance to do so. I was...

PACE Trial: People with ME — [Mr Philip Hollobone in the Chair] (20 Feb 2018)

Carol Monaghan: Absolutely. In fact, I will be calling for the patient voice to be heard in any treatments. Calls to publish the raw data—basic protocol in good research—were ignored. Queen Mary University spent an estimated £200,000 on keeping the data hidden. Finally, after a long battle, patients won a court order to force the PACE authors to release the data. It was discovered that the...

PACE Trial: People with ME — [Mr Philip Hollobone in the Chair] (20 Feb 2018)

Carol Monaghan: Yes. I will come on to how an appropriate trial could be done. First, I will mention the self-reporting that was a part of the trial. Questionnaires provided the data and measures of success. There were no physiological or scientific measurements. For patients the damage was done. I am a science teacher by profession and I always told my pupils that there are a number of stages to any...

PACE Trial: People with ME — [Mr Philip Hollobone in the Chair] (20 Feb 2018)

Carol Monaghan: This is a worldwide issue. The PACE trial results have affected people all over the world. In my folder, I have examples of people from Australia, the United States and Canada. Although there are no specialist centres in Scotland, the ones in England are recommending graded exercise therapy, which is making people worse. We need to deal with the issue.

PACE Trial: People with ME — [Mr Philip Hollobone in the Chair] (20 Feb 2018)

Carol Monaghan: I will make some progress. The PACE trial was used to inform NICE guidelines, which has meant that symptoms have been disregarded, and sufferers are considered to be attention-seeking hypochondriacs or even, in the case of some female patients, hysterical. Although in some ways the lack of belief has been the most difficult thing for sufferers and their families, the impact of the PACE trial...

PACE Trial: People with ME — [Mr Philip Hollobone in the Chair] (20 Feb 2018)

Carol Monaghan: I will in a moment. One mother contacted me, saying: “Our 12 year old son was seen at specialist ME centre by a consultant who prescribed GET. In one year this ‘programme’ caused our youngster’s body to develop higher and higher levels of inflammation, he began limping, was in continual pain from not only the ME headaches but joint and foot pain. The comments were...

PACE Trial: People with ME — [Mr Philip Hollobone in the Chair] (20 Feb 2018)

Carol Monaghan: Many parents who try to home school their children also face local authority intervention, trying to get the children back to school. We must listen to patients. This disease is very easy to ignore. All too often, those living with ME are housebound, and suffer from what they refer to as “brain fog”, which makes it difficult to mount an organised campaign. That means that much...

PACE Trial: People with ME — [Mr Philip Hollobone in the Chair] (20 Feb 2018)

Carol Monaghan: I give way to my hon. Friend.

PACE Trial: People with ME — [Mr Philip Hollobone in the Chair] (20 Feb 2018)

Carol Monaghan: I think that when the full details of the trial become known, it will be considered one of the biggest medical scandals of the 21st century.

PACE Trial: People with ME — [Mr Philip Hollobone in the Chair] (20 Feb 2018)

Carol Monaghan: I am just going to finish off. I am pleased that NICE is reviewing its guidelines on ME and has removed the recommendations to embark on harmful exercise, but I was contacted only last week by a lady who had been told recently by her GP to exercise her way to health. That highlights the huge need for education and for raising awareness among both the public and medical practitioners. I ask...

Backbench Business: Strengthening Families — [Mr Peter Bone in the Chair] (8 Feb 2018)

Carol Monaghan: It is a pleasure to serve under your chairmanship, Mr Bone, particularly since by allowing me to leave the debate early you have shown your appreciation for my family’s importance to me. I thank the hon. Member for Congleton (Fiona Bruce) for her considered and comprehensive speech. I agree with much of what she said. In preparing for the debate, I read the strengthening families...

Backbench Business: Strengthening Families — [Mr Peter Bone in the Chair] (8 Feb 2018)

Carol Monaghan: Absolutely. We are moving in that direction, but a huge amount of work still needs to be done. The Scottish Government support policies that encourage flexible working and free flexible childcare, to help to tackle the stigma affecting fathers who take on caring roles and to encourage a work-life balance for parents. Embracing flexible and family-friendly ways of working is not just the right...

Same-Sex Marriage in Bermuda (8 Feb 2018)

Carol Monaghan: I echo the views that have already been stated about our deep regrets about this step. Human rights groups have argued that the new legislation contradicts Bermuda’s constitution, which guarantees freedom from discrimination, and the repeal of the Act is a blow to LGBT campaigners in Bermuda and much further afield. How many representations did the Foreign Secretary make to...

Palestinian Children and Israeli Military Detention (7 Feb 2018)

Carol Monaghan: Will the hon. Gentleman give way?


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