Results 1–20 of 487 for (in the 'Commons debates' OR in the 'Westminster Hall debates' OR in the 'Lords debates' OR in the 'Northern Ireland Assembly debates') speaker:Carol Monaghan

ME: Treatment and Research — [Mr Andrew Rosindell in the Chair] (21 Jun 2018)

Carol Monaghan: I thank hon. Members once again—Thursday afternoon is not an easy time to stay behind for a debate, and I really appreciate the fact that they have done so. I also appreciate the great support from the people in the Public Gallery, many of whom are living with ME. It has been tough enough for us to sit here for three hours, so it must have been a hard slog for them. I hope they do not...

ME: Treatment and Research — [Mr Andrew Rosindell in the Chair] (21 Jun 2018)

Carol Monaghan: The Minister has rightly said that any patient has the right to withdraw from medical treatment. However, when the DWP is saying that patients must undertake graded exercise therapy, and when health insurance companies are saying that they must undertake graded exercise therapy, it puts the patient in a very difficult position.

ME: Treatment and Research — [Mr Andrew Rosindell in the Chair] (21 Jun 2018)

Carol Monaghan: Does the hon. Gentleman share my concern about the aspect of “medically unexplained symptoms” diverting ME down the psychological path?

ME: Treatment and Research — [Mr Andrew Rosindell in the Chair] (21 Jun 2018)

Carol Monaghan: Does the hon. Member agree that such questions are entirely unsuitable for people with many conditions but particularly for ME sufferers? “Can you walk up a flight of stairs?” “Yes, but it wipes me out for three weeks afterwards.” The examiners are not interested in the “but”. That does not figure in the questions.

ME: Treatment and Research — [Mr Andrew Rosindell in the Chair] (21 Jun 2018)

Carol Monaghan: I should have paid tribute to all hon. Members who supported my application for the debate, and who came along to make representations to the Backbench Business Committee, like the hon. Gentleman. I see several of them present, and I thank them.

ME: Treatment and Research — [Mr Andrew Rosindell in the Chair] (21 Jun 2018)

Carol Monaghan: I beg to move, That this House has considered myalgic encephalomyelitis treatment and research. It is a pleasure to serve under your chairmanship, Mr Rosindell. I thank the Backbench Business Committee for giving Members the opportunity to hold this debate. It is estimated that around a quarter of a million people in the UK suffer from myalgic encephalomyelitis—ME. It costs the UK...

ME: Treatment and Research — [Mr Andrew Rosindell in the Chair] (21 Jun 2018)

Carol Monaghan: I agree entirely with the hon. Gentleman. It is a tragic situation when children are not able to attend school and social services become involved because they consider there to be a problem with those children’s care.

ME: Treatment and Research — [Mr Andrew Rosindell in the Chair] (21 Jun 2018)

Carol Monaghan: I will come on to interactions with the Department for Work and Pensions. ME patients report that energy levels vary. Sometimes, going to such an appointment can wipe out someone for many weeks afterwards. If that person were to attend the appointment the following day, their condition would be very different.

ME: Treatment and Research — [Mr Andrew Rosindell in the Chair] (21 Jun 2018)

Carol Monaghan: ME receives practically no biomedical research funding, which I will come back to. Because of the misunderstanding of the condition, the treatments available are often more damaging to the person than no treatment at all. Merryn Crofts was just 15 when she experienced hives and swelling in her joints after a family holiday in Majorca. Tests revealed that she had contracted glandular fever....

ME: Treatment and Research — [Mr Andrew Rosindell in the Chair] (21 Jun 2018)

Carol Monaghan: I will come on to the NICE guidelines. They are under review, and all politicians can help with that. I have already written to NICE about the issue and I will ask the Minister about that later. We now know that 13% of the participants in the PACE trial qualified at baseline as “recovered” or “within the normal range” for one of the study’s two primary...

ME: Treatment and Research — [Mr Andrew Rosindell in the Chair] (21 Jun 2018)

Carol Monaghan: Indeed. Many people have written to me about their experience of GET, but some of the most upsetting examples are of children who were forced through a programme of GET and ended up with life-changing disabilities as a result.

ME: Treatment and Research — [Mr Andrew Rosindell in the Chair] (21 Jun 2018)

Carol Monaghan: I thank the hon. Lady for her intervention. Merryn’s is not an isolated case, and neither are those of my constituents—I am sure that Members present have all heard constituents describe the same situation. The PACE trial, which recommended CBT and GET, influences how health insurers and the DWP make their decisions. Insurance companies refuse to pay out unless a programme of GET...

ME: Treatment and Research — [Mr Andrew Rosindell in the Chair] (21 Jun 2018)

Carol Monaghan: I thank the hon. Gentleman for his intervention. Worryingly, the WHO is looking at reclassifying ME, too—we should all be aware of that—and its current classification of ME as a neurological condition has been ignored in terms of the treatment we have offered to patients here in the UK. The Royal College of Psychiatrists goes on to state that symptoms are “not due to a...

ME: Treatment and Research — [Mr Andrew Rosindell in the Chair] (21 Jun 2018)

Carol Monaghan: There are many conditions that we now think could be grouped under the wide umbrella of auto-immune conditions. Lyme disease, multiple sclerosis, rheumatoid arthritis and ME may all be in that group, but without research we do not know. Some people consider ME to be a psychological condition, despite the fact that people with ME are not allowed to be blood or organ donors. Unfortunately,...

ME: Treatment and Research — [Mr Andrew Rosindell in the Chair] (21 Jun 2018)

Carol Monaghan: I was not aware of that specific centre, but I am aware that almost all the biomedical research currently taking place in the UK is funded by charities and patient groups, rather than by the Government or research councils. Interestingly, Professor Sharpe, one of the authors of the PACE trial whom I already mentioned, emailed me this week and told me that my behaviour is “unbecoming of...

ME: Treatment and Research — [Mr Andrew Rosindell in the Chair] (21 Jun 2018)

Carol Monaghan: NICE has said that it will review its guidelines and talk to patient groups and ME charities in doing that. We must continue to urge it to ensure that that is the case, because those best placed to talk about the impact of the current guidelines and what should be in future guidelines are those living with ME.

ME: Treatment and Research — [Mr Andrew Rosindell in the Chair] (21 Jun 2018)

Carol Monaghan: One of the big issues we have is the real lack of awareness among many in the healthcare profession. I do not want to criticise people in healthcare, and in particular GPs, who have to cover many different conditions, but that highlights why GP education and ME awareness must be increased. It is not an uncommon condition, so we really need to look at that. What do we need to do now? First, we...

European Union (Withdrawal) Bill: Nato (20 Jun 2018)

Carol Monaghan: We have heard already this afternoon that Russian activity in the high north and the Black sea has reached levels not seen since the cold war. The NATO summit must be used to discuss and strengthen the alliance’s maritime strategy. The Russian activity off Scotland’s west coast is now at critical level. Air Chief Marshal Sir Stuart Peach has warned that British anti-submarine...

European Union (Withdrawal) Bill: Nato (20 Jun 2018)

Carol Monaghan: rose—

Glasgow School of Art (19 Jun 2018)

Carol Monaghan: Last year, some Members from Glasgow were given a tour of the painstaking restoration of the Mackintosh building by the School of Art’s director, Professor Tom Inns, who told us how the team who had been involved in the restoration of Windsor castle had offered their advice. Will the Secretary of State join me in thanking the international teams that are appearing to offer their advice,...


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